Gerri Hickman's battle with breast cancer
Geraldine Lynn Hickman
Have you and your family has a medical check-up lately? Have you been tested for cancer? If the answer to either of these questions is "NO" we suggest you change it to a "YES". There are surprises around every corner. As a family, we have been blessed with relatively few health problems. Up until 2001... JR had an appendectomy 12 years ago, Alexis had her gallbladder out in January 2001, and other than, for the delivery of both children, Gerri had never spent a day in the hospital... All of that started to change in February 2001... (If you want the events in sequence read from the bottom up.)
24 April 2009
Subject: The SAS students honour Gerri again with the 2009 Gerri Hickman Memorial Run
Subject: The SAS students honour Gerri again with the 2009 Gerri Hickman Memorial Run
01 February 2009
Subject: The new Memory Garden at SAS
31 May 2008
Subject: A couple of news articles
A couple of news articles about Dave's trip:
The San Diego Union - The Carlsbadistan
29 May 2008
Subject: Dave begins his journey
09 September 2007
Subject: Alexis participates in the 3rd Gerri Hickman Memorial Run at the Singapore American Middle School
10 September 2006
Subject: The 2nd Gerri Hickman Memorial Terry Fox Run at the Singapore American Middle School
The Singapore American School keeps the memory of Gerri alive. Here is what I wrote the Middle School Faculty after participating in the run today:
"We all have at least one thing in common these days, each and everyone one of us has been touched by cancer in some way, whether it is a loved one or colleague. Cancer has seeped into every aspect of life; it attacks people of every age, race, and sex. Your continued support and efforts will hopefully contribute to fewer cases of cancer and ultimately a cure!
Everything you did to help us when Gerri was battling cancer and now, honouring her memory again today fills Alexis, JR and me with pride. Thank you all for your continued support and, more importantly, for keeping Gerri's spirit alive.
Special thanks to Rob and Amanda and please pass our appreciation to all the kids for their participation.
Best regards,
Joe
P.S. Alexis is participating in the Susan G. Korman Breast Cancer Foundation Race for the Cure on 24 September in Orange County, California in two weeks.
09 September 2005
Subject: Gerri Hickman Memorial Terry Fox Run
Following is what I wrote to the Singapore American School Faculty:
"Yet again, I am awed by the SAS spirit.
Everything you did to help us when Gerri was battling cancer and now, honouring her memory today with the run and donation to the Cancer Society fills us with pride. I have a better understanding of why Gerri enjoyed working with all of you so much.
Special thanks to Rob, Amanda and Natalie for making it happen and please pass our appreciation to all the kids. Thank you for your continued support and, more importantly, for keeping Gerri's spirit alive it means so much to me, JR and Alexis."
Here are a few photos. Coincidently, the event was held 5 months to the day that Gerri passed away, 9 April.
05 September 2005
Subject: Gerri Honoured by Singapore American School
I was very pleasantly surprised to receive a call from Rob Godley, the Singapore American School Middle School Principal a few weeks ago asking me if I would be the starter for what is now being called The Gerri Hickman Memorial Terry Fox Run. Naturally I said yes and was also excited to learn that there would be a be a representative from the Singapore Cancer Society on hand to receive a donation of $2,500 from the sale of Gerri's Cookbooks. The event will take place on 9 September which is 5 months from the day Gerri passed away.
Again, I am overwhelmed by people's generosity and yet another demonstration of how much Gerri was liked and respected by her associates, friends and students.
31 July 2005
Subject: Gerri Hickman Memorial Terry Fox Run
The Gerri Hickman Memorial Terry Fox Run Twenty-five years ago, on April 12th, a young man with a big dream dipped his artificial leg in the Atlantic Ocean. The moment marked the beginning of Terry Fox's Marathon of Hope. It also marked the beginning of a journey that has touched millions of people around the world who continue to live Terry's dream of finding a cure for cancer.
Have you ever thought about running a marathon? Or does the thought of running the mile in PE leave you sweating, even before the event begins? Well, imagine planning to run a marathon every day for 5 to 6 months! That is what a young Canadian man did in 1981. In high school, Terry Fox loved all sports, including running. Unfortunately, he was in a bad car accident at the age of 17 and hurt his knee. Months later the knee was still giving him pain, so he went to the doctor. He found out he had cancer and would have to have his leg amputated . He had three days until the operation. Can you imagine that happening to you? The night before the operation, Terry read an article about a man with an artificial leg who had run the New York City Marathon . He realized that running was an activity he could still do. Inspired by other cancer sufferers he met in the hospital, Terry decided he would run across Canada and try to raise money for cancer research. Later, he came up with the idea of setting a goal to raise one dollar for every Canadian by the end of his run. At the time, the population of Canada was nearly 25 million! After 143 days and more than 5000 kilometres, Terry learned that the cancer had spread to his lungs and he would not be able to continue his run. Terry died on June 28, 1981, but his legacy lives on in the annual Terry Fox Run.
To date, more than $360 million has been raised worldwide for cancer research in Terry's name through the annual Terry Fox Run, held across Canada and around the world. Heroes come in all shapes and sizes. What made Terry heroic were his determination to succeed and his eternal optimism. Every Canadian I know who followed his progress across the country was, and continues to be, deeply moved by his incredible feat. We are all so very proud to claim Terry Fox as one of our own!
SAS Middle School's Gerri Hickman Memorial Terry Fox Run Since this year marks the 25th anniversary of the Marathon of Hope, we wanted to hold our very own Terry Fox Run/Walk. On September 9th, Middle School students from every grade level will participate in the first annual Gerri Hickman Memorial Terry Fox Run. Like many of us, the students and staff in the middle school were recently touched by cancer as Mrs. Hickman fought her own brave battle with this terrible disease. Mrs. Hickman passed away in April of 2005 and is sorely missed by those who knew her. The Middle School Gerri Hickman Memorial Terry Fox Run will take place during an extended home base period on September 9 and will honour the memory of Mrs. Hickman and others who have been affected by cancer. The course has been set inside the campus (click here to see route map) with the total distance of about 2 km. Everyone is encouraged to participate in this non-competitive run/walk as a way of bringing together students and teachers, grade levels and teams to celebrate and be thankful for our good health! Students are encouraged to wear PE clothes to take part in the event and to have a change of clothes for the remainder of the day.
Although fundraising is not the primary purpose of our event, we welcome your donations and encourage you to register for the Singapore Terry Fox Run at Sentosa on September 18th. Registration information will be available through your child's home base teacher and the Middle School Office.
Although fundraising is not the primary purpose of our event, we welcome your donations and encourage you to register for the Singapore Terry Fox Run at Sentosa on September 18th. Registration information will be available through your child's home base teacher and the Middle School Office.
03 August 2005
Subject: Trying to put the pieces back together
Next week it will be 4 months since Gerri passed away. I have not had the will to update anything and am continuing to struggle over losing my wife and best friend. Fortunately, I recognized that I did not have the strength to deal with the loss by myself so I have turned to family, friends and professionals to help get me back on track and learn how to deal with my grief. This past week the professionals suggested that I write down my thoughts, work on things that I enjoy and change my environment.
As I always enjoyed working on our website I have decided that there is no better place to share my thoughts than right here. I recently purchased some new artwork in Myanmar and am in the process of re-decorating the house. I want to change the space in which I reside but continue living in the home that Gerri and I made over the years.
My back is killing me from trying to paint the ceiling edges on a ladder that is too short for the project so I thought I would take a break and work on the website...
The service in California was one of the most emotional moments of my life. I was awed by the number of family and old friends that travelled great distances to pay their respects to Gerri and support the kids and I. Gerri's sister, Kathy, single handily made all the arrangements and opened her home to us to celebrate Gerri's life. Karen Lavoie, one of Gerri's closest high school friends, spoke with elegance and helped us remember wonderful moments of the past. Placing Gerri's ashes in the ground and burying them was harder than anything I could ever imagine and I am afraid that I did not 'keep it together' very well in front of everyone for which I apologize.
Doing this is harder than I thought so I think I will let others speak. If you click on the following you can read what others had to say. They are in PDF format (you can download a reader if you don't have it at:
Subject: Trying to put the pieces back together
Next week it will be 4 months since Gerri passed away. I have not had the will to update anything and am continuing to struggle over losing my wife and best friend. Fortunately, I recognized that I did not have the strength to deal with the loss by myself so I have turned to family, friends and professionals to help get me back on track and learn how to deal with my grief. This past week the professionals suggested that I write down my thoughts, work on things that I enjoy and change my environment.
As I always enjoyed working on our website I have decided that there is no better place to share my thoughts than right here. I recently purchased some new artwork in Myanmar and am in the process of re-decorating the house. I want to change the space in which I reside but continue living in the home that Gerri and I made over the years.
My back is killing me from trying to paint the ceiling edges on a ladder that is too short for the project so I thought I would take a break and work on the website...
The service in California was one of the most emotional moments of my life. I was awed by the number of family and old friends that travelled great distances to pay their respects to Gerri and support the kids and I. Gerri's sister, Kathy, single handily made all the arrangements and opened her home to us to celebrate Gerri's life. Karen Lavoie, one of Gerri's closest high school friends, spoke with elegance and helped us remember wonderful moments of the past. Placing Gerri's ashes in the ground and burying them was harder than anything I could ever imagine and I am afraid that I did not 'keep it together' very well in front of everyone for which I apologize.
Doing this is harder than I thought so I think I will let others speak. If you click on the following you can read what others had to say. They are in PDF format (you can download a reader if you don't have it at:
- Singapore American School Website
- Joe's words at the Memorial Service in Singapore
- Middle School Student Councils note to the Hickmans
- Singapore American School Memory Book
- Singapore American School Newspaper
- Singapore American School Yearbook
- Minister's notes from California
16 April 2005
Subject: Memorial Service for Gerri - 21 April 2005 - California
Thank you for the many emails, cards, flowers and many expressions of concern for Alexis, JR and I.
The memorial service held in Singapore was wonderful. To see how well respected and liked Gerri was by her students and colleagues was inspiring to us all. The three of us are heading for California with Gerri's ashes on Monday 18 April. There will be a memorial service:
Thursday, April 21, 2005 11:00 a.m.
Green Hills Memorial Park Chapel
27501 South Western Ave.
Rancho Palos Verdes, CA 90732
http://www.greenhillsmemorial.com
The interment will occur immediately after the service. All are invited to join the family at the home of Kathy Williams. Pastor Bill Hemenway will officiate.
Subject: Memorial Service for Gerri - 21 April 2005 - California
Thank you for the many emails, cards, flowers and many expressions of concern for Alexis, JR and I.
The memorial service held in Singapore was wonderful. To see how well respected and liked Gerri was by her students and colleagues was inspiring to us all. The three of us are heading for California with Gerri's ashes on Monday 18 April. There will be a memorial service:
Thursday, April 21, 2005 11:00 a.m.
Green Hills Memorial Park Chapel
27501 South Western Ave.
Rancho Palos Verdes, CA 90732
http://www.greenhillsmemorial.com
The interment will occur immediately after the service. All are invited to join the family at the home of Kathy Williams. Pastor Bill Hemenway will officiate.
11 April 2005
Subject: Gerri's 4 year 2 month battle with cancer is over
I do not know how to write this part as it is something we always refused to believe could ever happen... But cancer finally won the last battle and took Gerri away from me, our children, family and friends.
I was holding Gerri in my arms at 5:30am on Saturday 9 April 2005 when she left this world for what I have to believe is a better and pain free place where she no longer has to endure the endless hours of being medicated, bandaged, tested and all the other horrible things that cancer victims have to endure.
JR, Alexis and I cremated Gerri early Sunday morning with a few close friends in attendance here in Singapore. The Singapore American School is holding a memorial service at the Singapore American Club at 4:30 on Tuesday 12 April. A few days later the kids and I will travel to Southern California with Gerri's ashes for a service and place her remains in her final resting place.
In lieu of flowers and cards it would be our wish that you make a donation of any size to one of the many cancer societies so that they can do more research to stop this killer disease.
Subject: Gerri's 4 year 2 month battle with cancer is over
I do not know how to write this part as it is something we always refused to believe could ever happen... But cancer finally won the last battle and took Gerri away from me, our children, family and friends.
I was holding Gerri in my arms at 5:30am on Saturday 9 April 2005 when she left this world for what I have to believe is a better and pain free place where she no longer has to endure the endless hours of being medicated, bandaged, tested and all the other horrible things that cancer victims have to endure.
JR, Alexis and I cremated Gerri early Sunday morning with a few close friends in attendance here in Singapore. The Singapore American School is holding a memorial service at the Singapore American Club at 4:30 on Tuesday 12 April. A few days later the kids and I will travel to Southern California with Gerri's ashes for a service and place her remains in her final resting place.
In lieu of flowers and cards it would be our wish that you make a donation of any size to one of the many cancer societies so that they can do more research to stop this killer disease.
23 January 2005 1634
Subject: On, off and on again...
The 5Fu brought back the mouth ulcers so they took the pump off for a week of rest then went back with a lower dosage. The pain in Gerri's back persists so we have had to step up the painkillers to another level. Having JR here for a few weeks has been a great medicine... JR departs tomorrow which we are not excited about but Alexis arrives tomorrow night which will bring the smile back on Gerri's face...
01 January 2005 0829
Subject: Starting New Year with old drug combination...
Well the Avastin Navelbine combination is just not doing the trick. The bumps and pain in Gerri's back and side persist. The doctor has decided to go back to a combination of Avastin and continuous flow 5FU which means Gerri will carry a pump with her all the time and it will administer a constant flow of medication into her system. This combination worked before but the side effects were an issue... We simply have no choice. We hope and pray that 2005 will be the year Gerri can finally beat this horrible disease. We spent a quiet New Year's eve at home watching season 3 of '24' which just arrived on DVD...
Subject: Starting New Year with old drug combination...
Well the Avastin Navelbine combination is just not doing the trick. The bumps and pain in Gerri's back and side persist. The doctor has decided to go back to a combination of Avastin and continuous flow 5FU which means Gerri will carry a pump with her all the time and it will administer a constant flow of medication into her system. This combination worked before but the side effects were an issue... We simply have no choice. We hope and pray that 2005 will be the year Gerri can finally beat this horrible disease. We spent a quiet New Year's eve at home watching season 3 of '24' which just arrived on DVD...
24 December 2004 1614
Subject: Only wishing for one thing this Christmas...
The Avastin Navelbine appear to be doing some good although results are slow in coming. The combination has done a job on Gerri in terms of knocking the wind out of her sails... She is tired even after 9 hours of sound sleep... She gets easily winded so we take it easy... Spent only an a short time at Mount Elizabeth today and do not have to go back until Monday for blood checks. It will be a quiet Christmas at home. Joe bought a turkey and all the fixings for them on Christmas day... only problem is that Gerri barely takes more than a few bites at dinner time so Joe is figuring out what all they can do with leftovers...
Subject: Only wishing for one thing this Christmas...
The Avastin Navelbine appear to be doing some good although results are slow in coming. The combination has done a job on Gerri in terms of knocking the wind out of her sails... She is tired even after 9 hours of sound sleep... She gets easily winded so we take it easy... Spent only an a short time at Mount Elizabeth today and do not have to go back until Monday for blood checks. It will be a quiet Christmas at home. Joe bought a turkey and all the fixings for them on Christmas day... only problem is that Gerri barely takes more than a few bites at dinner time so Joe is figuring out what all they can do with leftovers...
12 December 2004 0530
Subject: Experimental combination...
The doctors changed the agenda again and we are heading into some uncharted waters.
The Alimta did nothing, in fact the cancer spread almost faster... Avastin was the best chemo for Gerri in the past but caused severe thrombosis and since Avastin causes bleeding it could not be used in conjunction with blood thinners that dissolve the thrombosis... Navelbine also worked well for Gerri but caused severe mouth ulcers... A new oral version of Navelbine was just released so it was decided to try a combination of Avastin oral Navelbine concurrently along with Fraxiparine (blood thinner). So we watch, wait, pray and see how things go...
Subject: Experimental combination...
The doctors changed the agenda again and we are heading into some uncharted waters.
The Alimta did nothing, in fact the cancer spread almost faster... Avastin was the best chemo for Gerri in the past but caused severe thrombosis and since Avastin causes bleeding it could not be used in conjunction with blood thinners that dissolve the thrombosis... Navelbine also worked well for Gerri but caused severe mouth ulcers... A new oral version of Navelbine was just released so it was decided to try a combination of Avastin oral Navelbine concurrently along with Fraxiparine (blood thinner). So we watch, wait, pray and see how things go...
04 December 2004 0937
Subject: Not working... something new next week
The Alimta is definitely not working so next week it is something new. The oncologist is awaiting shipment of a new drug that is coming from the USA and we will try that.... More later.
15 November 2004 1354
Subject: Mixed results
Not much new to report. Alimta is a bit slow to react so there has been some visible return of the cancer in spots where we thought it was totally gone... The radiation burn continues to a big challenge with daily dressing changes and a myriad of different types of dressing.
24 October 2004 0627 Sunday
Subject: More scans - not what we wanted to find...
Gerri had a complete series of scans yesterday and today we were advised that there is a small spot on her liver and the thrombosis has returned in a serious way. As Avastin can not be given in conjunction with blood thinners (which are needed to treat the thrombosis) they have to stop the Avastin and try something new. It is back to daily injections of Fraxiparine to thin her blood and the doctor is switching her to a new chemo that targets cancer in the brain, liver and skin. Alimta is the new drug of choice... The side effects are most of the usual ones Gerri has experienced before such as mouth ulcers, rashes, nausea etc The good news is no hair loss with this one. So here we go a again with something new...
Subject: Not working... something new next week
The Alimta is definitely not working so next week it is something new. The oncologist is awaiting shipment of a new drug that is coming from the USA and we will try that.... More later.
15 November 2004 1354
Subject: Mixed results
Not much new to report. Alimta is a bit slow to react so there has been some visible return of the cancer in spots where we thought it was totally gone... The radiation burn continues to a big challenge with daily dressing changes and a myriad of different types of dressing.
24 October 2004 0627 Sunday
Subject: More scans - not what we wanted to find...
Gerri had a complete series of scans yesterday and today we were advised that there is a small spot on her liver and the thrombosis has returned in a serious way. As Avastin can not be given in conjunction with blood thinners (which are needed to treat the thrombosis) they have to stop the Avastin and try something new. It is back to daily injections of Fraxiparine to thin her blood and the doctor is switching her to a new chemo that targets cancer in the brain, liver and skin. Alimta is the new drug of choice... The side effects are most of the usual ones Gerri has experienced before such as mouth ulcers, rashes, nausea etc The good news is no hair loss with this one. So here we go a again with something new...
11 September 2004 1509 Saturday
Subject: Gerri's new 'do'...
Did you know Gerri smiles all the time when she is talking to you guys on the phone? I should talk though, when I was describing to someone how to find our office the other day I caught myself pointing which way to go over the phone. A mind is a sad thing to waste . Gerri was chatting with Alexis when I took this photo. I like her new 'do'!
Just back from 3 hours of chemo treatments, that coupled with 6 hours yesterday makes a great start to Gerri's weekend (frown).
BUT. this new stuff is working and we are seeing good improvement. The radiation burn is getting smaller and is easier to treat/dress than what we were going through in May, June July, August...
Subject: Gerri's new 'do'...
Did you know Gerri smiles all the time when she is talking to you guys on the phone? I should talk though, when I was describing to someone how to find our office the other day I caught myself pointing which way to go over the phone. A mind is a sad thing to waste . Gerri was chatting with Alexis when I took this photo. I like her new 'do'!
Just back from 3 hours of chemo treatments, that coupled with 6 hours yesterday makes a great start to Gerri's weekend (frown).
BUT. this new stuff is working and we are seeing good improvement. The radiation burn is getting smaller and is easier to treat/dress than what we were going through in May, June July, August...
If this chemo was not so hard on her blood counts we would be home-free. Need to stuff her fullof lots of proteins. Sometimes I think it is easier feeding beets or spinach to a baby than it is getting Gerri to eat a reasonable size piece of beef. But I keep sticking more and more on her plate.
22 August 2004 1014 Sunday
Subject: And the treatments continue...
The doctor has 'toned down' the doses as the drugs are very tough on Gerri's blood counts but the they continue to work and the visible cancer is getting 'less visible'. She will continue with the Avastin and 5FU combination but spread the treatments further apart. The radiation burn is finally starting to heal, still a concern and a certain amount of pain but nothing like it was weeks ago. We are definitely headed in the right direction!
22 August 2004 1014 Sunday
Subject: And the treatments continue...
The doctor has 'toned down' the doses as the drugs are very tough on Gerri's blood counts but the they continue to work and the visible cancer is getting 'less visible'. She will continue with the Avastin and 5FU combination but spread the treatments further apart. The radiation burn is finally starting to heal, still a concern and a certain amount of pain but nothing like it was weeks ago. We are definitely headed in the right direction!
08 August 2004 0734 Sunday
Subject: With the good comes the not so good...
The combination of the Avastin and the 5FU has been working wonders! We can actually see the dramatic changes as tumours shrink and the painful inflammation that stretches across Gerri's back has reduced considerable and is no longer as painful. The open wound continues to reduce and we are in hopes that it will no long require special dressings in the next few weeks.
The not so good part is that the usual symptoms associated with so many chemo drugs seem to be amplified and certainly are worse with these drugs than Gerri has ever experienced with all the other chemo's taken over the past 3 1/2 years. Severe nausea, constipation, blood counts (both white cells and platelets) have dropped so low that we have to keep Gerri away from other people and she has to take medication to help stop excessive bleeding during the usual morning bloody nose session for just your typical everyday cuts and scraps. The morphine patch Gerri wears numbs much of the pain but also knocks the winds out of Gerri's sails and makes it necessary for her to stop activity and just sit and cat nap from time to time. Saying all that, the drugs are working and we hope this is the combination that will turn the tide.
Having Alexis home in Singapore for a month was wonderful for Gerri. The spent lots of "quality time" and had thoroughly enjoyed each other's company. Joe had several business trips scheduled while Alexis was here so he did not get to see her very much but he took solace in the fact that she was here looking after Gerri while he was on the road. Gerri will most likely need to wear a mask at school as classes start up next week.
Subject: With the good comes the not so good...
The combination of the Avastin and the 5FU has been working wonders! We can actually see the dramatic changes as tumours shrink and the painful inflammation that stretches across Gerri's back has reduced considerable and is no longer as painful. The open wound continues to reduce and we are in hopes that it will no long require special dressings in the next few weeks.
The not so good part is that the usual symptoms associated with so many chemo drugs seem to be amplified and certainly are worse with these drugs than Gerri has ever experienced with all the other chemo's taken over the past 3 1/2 years. Severe nausea, constipation, blood counts (both white cells and platelets) have dropped so low that we have to keep Gerri away from other people and she has to take medication to help stop excessive bleeding during the usual morning bloody nose session for just your typical everyday cuts and scraps. The morphine patch Gerri wears numbs much of the pain but also knocks the winds out of Gerri's sails and makes it necessary for her to stop activity and just sit and cat nap from time to time. Saying all that, the drugs are working and we hope this is the combination that will turn the tide.
Having Alexis home in Singapore for a month was wonderful for Gerri. The spent lots of "quality time" and had thoroughly enjoyed each other's company. Joe had several business trips scheduled while Alexis was here so he did not get to see her very much but he took solace in the fact that she was here looking after Gerri while he was on the road. Gerri will most likely need to wear a mask at school as classes start up next week.
25 July 2004 0853 Sunday
Subject: Good results with Avastin 5FU
It has been a good week! The combination of Avastin and the 5FU has been very positive and there is a marked improvement in that it appears to be controlling the spread of the cancer and is significantly reducing the pain that Gerri has been experiencing. We can see the bumps reducing in size and some even disappearing. The portion across her back appears to be reducing and is certainly not as bright red as it has been for the past few weeks. The open wound is still a challenge but we have seen improvement. One of the side effects of Avastin is that it causes bleeding which makes treating the wound more difficult but it is being dealt with... We hope and pray that this 'formula' will be 'the one'!
Subject: Good results with Avastin 5FU
It has been a good week! The combination of Avastin and the 5FU has been very positive and there is a marked improvement in that it appears to be controlling the spread of the cancer and is significantly reducing the pain that Gerri has been experiencing. We can see the bumps reducing in size and some even disappearing. The portion across her back appears to be reducing and is certainly not as bright red as it has been for the past few weeks. The open wound is still a challenge but we have seen improvement. One of the side effects of Avastin is that it causes bleeding which makes treating the wound more difficult but it is being dealt with... We hope and pray that this 'formula' will be 'the one'!
25 July 2004 0853 Sunday
Subject: Good results with Avastin 5FU
It has been a good week! The combination of Avastin and the 5FU has been very positive and there is a marked improvement in that it appears to be controlling the spread of the cancer and is significantly reducing the pain that Gerri has been experiencing. We can see the bumps reducing in size and some even disappearing. The portion across her back appears to be reducing and is certainly not as bright red as it has been for the past few weeks. The open wound is still a challenge but we have seen improvement. One of the side effects of Avastin is that it causes bleeding which makes treating the wound more difficult but it is being dealt with... We hope and pray that this 'formula' will be 'the one'!
Subject: Good results with Avastin 5FU
It has been a good week! The combination of Avastin and the 5FU has been very positive and there is a marked improvement in that it appears to be controlling the spread of the cancer and is significantly reducing the pain that Gerri has been experiencing. We can see the bumps reducing in size and some even disappearing. The portion across her back appears to be reducing and is certainly not as bright red as it has been for the past few weeks. The open wound is still a challenge but we have seen improvement. One of the side effects of Avastin is that it causes bleeding which makes treating the wound more difficult but it is being dealt with... We hope and pray that this 'formula' will be 'the one'!
18 July 2004 2154 Sunday
Subject: Has it been almost two months?
Where does the time go... Since the last update we have had so many up and downs I don't know where to start... We got cleared to travel on 15 June so on 16 June Gerri and Joe were on the new non-stop Singapore Airlines flight to Los Angeles. The flight was 16 hours, 20 minutes which is a huge improvement over the usual 24+ hour commutes we have been used to in the past.
Subject: Has it been almost two months?
Where does the time go... Since the last update we have had so many up and downs I don't know where to start... We got cleared to travel on 15 June so on 16 June Gerri and Joe were on the new non-stop Singapore Airlines flight to Los Angeles. The flight was 16 hours, 20 minutes which is a huge improvement over the usual 24+ hour commutes we have been used to in the past.
The security in the USA was a bit much (out of control actually...but that is another story that Joe will get into later...) Two days were spent with Alexis in Santa Barbara which were GREAT!... Then it was down to Southern California to see JR and the rest of the family... Remind Joe to tell you how after a search of their luggage by the crack TSA agents who found some of the morphine that is prescribed for Gerri to take, which is a controlled substance in California and they didn't' have the "proper authorisation" to be carrying it. 3 Santa Barbara Policemen and 3 federal TSA agents and an hour later they were released with a warning (unbelievable, travelling in the USA is worse than 3rd country these days...). I think several Constitutional rights were contravened...
All the while the post radiation area was open and in need of daily bandaging... Each day got progressively worse until finally we found ourselves in the emergency room of Hoag Memorial Hospital wondering if we were going to be able to fly back home... A day later we boarded a flight and on Monday morning (5th July) we were back at Mount Elizabeth being told that the antibiotics administered in the USA would delay the chemo treatments...
Now Gerri is on Fluorouracil (5FU) and Avastin (pronounced ah-va'-stin) which is the first of a new class of drugs used to treat cancer. Avastin is a new type of cancer treatment called anti-antigenic therapy. Avastin is not chemotherapy. It is a "monoclonal antibody". Monoclonal antibodies are generally a more targeted therapy than chemotherapy. Avastin was just recently approved by the FDA for use in patients with colon cancer but the doctors believe it has other applications and it appears to be helping so we have our fingers crossed...
Now Gerri is on Fluorouracil (5FU) and Avastin (pronounced ah-va'-stin) which is the first of a new class of drugs used to treat cancer. Avastin is a new type of cancer treatment called anti-antigenic therapy. Avastin is not chemotherapy. It is a "monoclonal antibody". Monoclonal antibodies are generally a more targeted therapy than chemotherapy. Avastin was just recently approved by the FDA for use in patients with colon cancer but the doctors believe it has other applications and it appears to be helping so we have our fingers crossed...
To deal with the pain Gerri wears a morphine patch which makes her a bit giddy and nauseous at times but they have other pills to help that too... After only a week we are seeing some positive results and the radiated area is finally starting to heal...
Like I have said before... round and round we go...
Like I have said before... round and round we go...
29 May 2004 0718 Saturday
Subject: Round and round we go...
Round and round we go... Where we stop? Nobody knows!
On some days this really summaries what Gerri is going through, especially this past month. The pump has been an on-and-off-again thing. Gerri can handle it for a few days but then the mouth ulcers come back as does the pain in her feet so they take it off, give her a few days to re-coup then put it back again just as she starts to feel better... a very vicious cycle.
There is a much larger patch of raw/open skin where the cancer has weakened the skin to the point that it opens up. This means special ointments and bandages that have to be applied a couple of times a day. Again, a vicious cycle as they adhere to the wound but for radiation they must be removed which opens the wound up only to put the bandages back to adhere to the wound again... like I said, it is a merry-go-round but not the fun kind we remember as kids.
Subject: Round and round we go...
Round and round we go... Where we stop? Nobody knows!
On some days this really summaries what Gerri is going through, especially this past month. The pump has been an on-and-off-again thing. Gerri can handle it for a few days but then the mouth ulcers come back as does the pain in her feet so they take it off, give her a few days to re-coup then put it back again just as she starts to feel better... a very vicious cycle.
There is a much larger patch of raw/open skin where the cancer has weakened the skin to the point that it opens up. This means special ointments and bandages that have to be applied a couple of times a day. Again, a vicious cycle as they adhere to the wound but for radiation they must be removed which opens the wound up only to put the bandages back to adhere to the wound again... like I said, it is a merry-go-round but not the fun kind we remember as kids.
Daily radiation continues, the right side cleared nicely so the radiation appears to have worked, now it is on to the left side to see if they can attack the cells that are opening the skin. We hope this will be 'the one'! The doctors did say that Gerri needs a break from Chemo and radiation so we are hopeful we can use the break to fly to the USA to see the kids, family and friends. Nothing firm yet but we are keeping our fingers crossed and will advise when we know.
25 April 2004 12:27 Sunday
Subject: 10 steps forward, 9.5 steps back...
As things were not progressing as fast as the oncologist or we would like, Gerri was taken off chemo and switched to a new regime of an antibody called herceptin and a daily hormone called aromasin on the 10th of April.
This produced mixed results. In some areas there was regression but the cancer continued to spread in other areas moving up the that area where the catheter is inserted which causes problems with protecting the area where the catheter protrudes from the skin. So on Friday they went back to a new chemo blend and added a pump to Gerri's wardrobe... It is an interesting device in that is the size and look of a Christmas ornament and works by vacuum from Gerri's blood flow. It is hooked up the catheter and pumps 5FU continuously into her blood. Just another challenge to cope with when showering and picking out her wardrobe (making sure there are pockets in which the pump can be carried...).
The daily radiation continues with a planned two week rest coming up next week. The radiation appears to be working although it is really difficult to see as most of the area is now bright red from the effects of radiation. Time will tell...
Through all of this Gerri continues to be positive and Joe is ever awed by her strength and the fact that she never complains... A couple of areas have blistered and opened at the surface which are itchy and painful but rarely does Joe catch more than a grimace when Gerri thinks no one is looking. Gerri has been a pillar of strength through all of this and is truly an inspiration!
Subject: 10 steps forward, 9.5 steps back...
As things were not progressing as fast as the oncologist or we would like, Gerri was taken off chemo and switched to a new regime of an antibody called herceptin and a daily hormone called aromasin on the 10th of April.
This produced mixed results. In some areas there was regression but the cancer continued to spread in other areas moving up the that area where the catheter is inserted which causes problems with protecting the area where the catheter protrudes from the skin. So on Friday they went back to a new chemo blend and added a pump to Gerri's wardrobe... It is an interesting device in that is the size and look of a Christmas ornament and works by vacuum from Gerri's blood flow. It is hooked up the catheter and pumps 5FU continuously into her blood. Just another challenge to cope with when showering and picking out her wardrobe (making sure there are pockets in which the pump can be carried...).
The daily radiation continues with a planned two week rest coming up next week. The radiation appears to be working although it is really difficult to see as most of the area is now bright red from the effects of radiation. Time will tell...
Through all of this Gerri continues to be positive and Joe is ever awed by her strength and the fact that she never complains... A couple of areas have blistered and opened at the surface which are itchy and painful but rarely does Joe catch more than a grimace when Gerri thinks no one is looking. Gerri has been a pillar of strength through all of this and is truly an inspiration!
03 April 2004 13:53 Saturday
Subject: It has been a long month...
Wow... It is April already. Our baby Alexis turns 21 next week and Joe turns 51...One entering legal adulthood the other entering the second half century mark... My things have changed in 30 years!
Gerri has been battling cancer for over 3 years now! I guess the good news is that time is flying by in some respects, although there have been days the last several weeks that crawl by. Gerri continues to endure daily radiation treatments for the new cancer on her right side. The radiation treatments appear to have stopped the spread for which we are thankful. The cancer is not gone but it is not as aggressive looking nor painful as it was a few weeks ago. The left side continues to be a concern the chemo seems to break parts of it up but also appears to only chase it outward to cover a much greater portion of Gerri's left torso.
Saturdays are spent in the Oncology centre where Gerri is hooked up to IV's with the multiple tubes coming out of plastic bags delivering a multitude of different concoctions which are a variety of vitamins, chemo, anti-nausea, saline, blood boosters etc all feeding through the catheter that remains embedded in Gerri's left shoulder. Gerri's blood is always borderline (the chemo and radiation play hell with counts) so she has to get boosters a couple times a week along with regular blood checks to make sure the levels are being maintained. Sleepless nights are more prevalent for both Gerri and Joe these days. Gerri because she naps a lot after treatments and the medicines in her blood are having a field day and keep her up in the wee hours.... Joe lays in bed at night worrying about Gerri. The good news is they seem to alternate nights so one is relatively rested to take care of the other...Joe let his guard down and had a bout of bronchitis which was not in schedule but a couple bottles of antibiotics cleared things up...
We do appreciate the many emails and notes and beg your forgiveness about slow responses.... It is just that some days you want to talk about it but there are many other days that you just want to try and forget about it... We hope you understand. Happy Easter to you and yours!
Subject: It has been a long month...
Wow... It is April already. Our baby Alexis turns 21 next week and Joe turns 51...One entering legal adulthood the other entering the second half century mark... My things have changed in 30 years!
Gerri has been battling cancer for over 3 years now! I guess the good news is that time is flying by in some respects, although there have been days the last several weeks that crawl by. Gerri continues to endure daily radiation treatments for the new cancer on her right side. The radiation treatments appear to have stopped the spread for which we are thankful. The cancer is not gone but it is not as aggressive looking nor painful as it was a few weeks ago. The left side continues to be a concern the chemo seems to break parts of it up but also appears to only chase it outward to cover a much greater portion of Gerri's left torso.
Saturdays are spent in the Oncology centre where Gerri is hooked up to IV's with the multiple tubes coming out of plastic bags delivering a multitude of different concoctions which are a variety of vitamins, chemo, anti-nausea, saline, blood boosters etc all feeding through the catheter that remains embedded in Gerri's left shoulder. Gerri's blood is always borderline (the chemo and radiation play hell with counts) so she has to get boosters a couple times a week along with regular blood checks to make sure the levels are being maintained. Sleepless nights are more prevalent for both Gerri and Joe these days. Gerri because she naps a lot after treatments and the medicines in her blood are having a field day and keep her up in the wee hours.... Joe lays in bed at night worrying about Gerri. The good news is they seem to alternate nights so one is relatively rested to take care of the other...Joe let his guard down and had a bout of bronchitis which was not in schedule but a couple bottles of antibiotics cleared things up...
We do appreciate the many emails and notes and beg your forgiveness about slow responses.... It is just that some days you want to talk about it but there are many other days that you just want to try and forget about it... We hope you understand. Happy Easter to you and yours!
28 February 2004 13:21 Saturday
Subject: Slow down...
The Taxol has been pumped in every Saturday for the past four weeks and we have started to see some improvement although the cancer continues to spread. It has played hell on Gerri's blood counts so she is getting booster shots several times a week to keep the blood at a level where Gerri can tolerate the chemo. In spite of extra boosters this week... this morning the doctor said she could just not administer this weeks dose as Gerri's blood counts were down so low. We will try double boosters today and tomorrow and Gerri will go for blood tests on Monday, if the levels are up they will proceed with a course of Taxol, if not, we will have to explore other options.
The doctor is pleased with how the chemo is cleaning up the left breast area but it is not stopping the growth in the right breast. There are some new drugs coming on the market and the doctor will consult with her colleagues and decide which might be worth trying on Gerri. Again, the great news is the only side effects are hair loss and feeling run-down... which are better than pain and discomfort... Will keep you advised.
Subject: Slow down...
The Taxol has been pumped in every Saturday for the past four weeks and we have started to see some improvement although the cancer continues to spread. It has played hell on Gerri's blood counts so she is getting booster shots several times a week to keep the blood at a level where Gerri can tolerate the chemo. In spite of extra boosters this week... this morning the doctor said she could just not administer this weeks dose as Gerri's blood counts were down so low. We will try double boosters today and tomorrow and Gerri will go for blood tests on Monday, if the levels are up they will proceed with a course of Taxol, if not, we will have to explore other options.
The doctor is pleased with how the chemo is cleaning up the left breast area but it is not stopping the growth in the right breast. There are some new drugs coming on the market and the doctor will consult with her colleagues and decide which might be worth trying on Gerri. Again, the great news is the only side effects are hair loss and feeling run-down... which are better than pain and discomfort... Will keep you advised.
01 February 2004 06:00 Sunday
Subject: Highs and lows
The revised chemo plan has proved unsuccessful. While the reduced levels have kept Gerri from getting as ill they have also not been effective in controlling the cancer. The patches are spreading. This week the doctor was very concerned and sent Gerri in for bone and internal organ scans. Much to our relief the scans did not indicate that the cancer had spread internally, but is confined to the surface. After discussions with the oncologist it was decided that Gerri would go back on Taxol which is the first chemo she had 3 years ago. It proved effective in reducing the original lump so we hope it can work again. Taxol will make the rest of Gerri's hair fall out but then again, there is not that much to fall out...
So here she goes again... 12 weeks of weekly chemo sessions. The object is to stop the spread and reduce the cancer to a point where radiation can mop it up.
Subject: Highs and lows
The revised chemo plan has proved unsuccessful. While the reduced levels have kept Gerri from getting as ill they have also not been effective in controlling the cancer. The patches are spreading. This week the doctor was very concerned and sent Gerri in for bone and internal organ scans. Much to our relief the scans did not indicate that the cancer had spread internally, but is confined to the surface. After discussions with the oncologist it was decided that Gerri would go back on Taxol which is the first chemo she had 3 years ago. It proved effective in reducing the original lump so we hope it can work again. Taxol will make the rest of Gerri's hair fall out but then again, there is not that much to fall out...
So here she goes again... 12 weeks of weekly chemo sessions. The object is to stop the spread and reduce the cancer to a point where radiation can mop it up.
11 January 2004 11:16 Sunday
Subject: Stumbling along
The ulcers are gone as are most of the other pains and problems Gerri experienced two weeks ago. In spite of the fact that the doctor said it wouldn't... Gerri hair is falling out again. It took us a while to find the box of hats that we fortunately didn't throw away. Yesterday's blood check found red blood cell counts falling (as opposed to white...) but she was given some boosters to hopefully counteract the effects. Gerri has been wearing the pump again this week. No fun for her to carry it around everywhere and showers are a complicated process with having to make sure the left shoulder where the catheter protrudes does not get wet, keeping the pump high so it does not get wet and trying not to be twisted up in the tubing... But this is better then pain and not being able to get out of bed...
01 January 2004 08:10 Thursday
Subject: "What a difference a day makes..."
Gerri's the oral ulcers are almost gone and Gerri has no more pain. She is still not eating as much as I would like but anything is better than what we went through the past two weeks. The good news through all this is that all the chemo beat the heck out of Gerri (with side effects) it is having a very positive effect on the cancer. The Oncologist is working to use the same chemo beginning next week but to change the dose and give Gerri other drugs to counter the side effects.
Wish us luck!
Subject: Stumbling along
The ulcers are gone as are most of the other pains and problems Gerri experienced two weeks ago. In spite of the fact that the doctor said it wouldn't... Gerri hair is falling out again. It took us a while to find the box of hats that we fortunately didn't throw away. Yesterday's blood check found red blood cell counts falling (as opposed to white...) but she was given some boosters to hopefully counteract the effects. Gerri has been wearing the pump again this week. No fun for her to carry it around everywhere and showers are a complicated process with having to make sure the left shoulder where the catheter protrudes does not get wet, keeping the pump high so it does not get wet and trying not to be twisted up in the tubing... But this is better then pain and not being able to get out of bed...
01 January 2004 08:10 Thursday
Subject: "What a difference a day makes..."
Gerri's the oral ulcers are almost gone and Gerri has no more pain. She is still not eating as much as I would like but anything is better than what we went through the past two weeks. The good news through all this is that all the chemo beat the heck out of Gerri (with side effects) it is having a very positive effect on the cancer. The Oncologist is working to use the same chemo beginning next week but to change the dose and give Gerri other drugs to counter the side effects.
Wish us luck!
28 December 2003 11:35 Sunday
Subject: Feeling a bit better
This past week will definitely not go on the record as one of the better holidays... The good news is that for the first time in 10 days Gerri feels a bit better and we have graduated from purely liquids to soft boiled eggs... Christmas day was extremely quiet, with a couple naps during the day. Friday it was another dose of IV delivered antibiotics along with some boosters. Yesterday morning we took Alexis to the airport and felt miserable that her entire vacation was spent in the house but in her usual way she made us feel OK with it.
Later on Saturday it was back to the doctors and were pleased to find out that all the boosters shots had helped bring the white blood count but the red cells were now low... Something new to work on... The doctor also gave Gerri a morphine cocktail that really knocks her out and helps her get much needed rest. Definitely feeling better than we did a few days ago...
Subject: Feeling a bit better
This past week will definitely not go on the record as one of the better holidays... The good news is that for the first time in 10 days Gerri feels a bit better and we have graduated from purely liquids to soft boiled eggs... Christmas day was extremely quiet, with a couple naps during the day. Friday it was another dose of IV delivered antibiotics along with some boosters. Yesterday morning we took Alexis to the airport and felt miserable that her entire vacation was spent in the house but in her usual way she made us feel OK with it.
Later on Saturday it was back to the doctors and were pleased to find out that all the boosters shots had helped bring the white blood count but the red cells were now low... Something new to work on... The doctor also gave Gerri a morphine cocktail that really knocks her out and helps her get much needed rest. Definitely feeling better than we did a few days ago...
24 December 2003 16:36 Wednesday
Subject: Not the holiday we had planned...
Gerri spent 3 1/2 days hooked up to IV's trying to clear up some the horrible side effects of the chemo. We were sent home today with several injections, dozens of pills and emergency numbers just in case we need to reach someone on Christmas day. Her white blood cell count dropped to a new low which makes her tire easily and we need to keep her away from other folks especially during this time of flu and colds as she is very susceptible to catching something with her low counts. It will be a very quiet holiday at home made brighter with the delivery of flowers from our good friend Ann Barker in the USA.
Subject: Not the holiday we had planned...
Gerri spent 3 1/2 days hooked up to IV's trying to clear up some the horrible side effects of the chemo. We were sent home today with several injections, dozens of pills and emergency numbers just in case we need to reach someone on Christmas day. Her white blood cell count dropped to a new low which makes her tire easily and we need to keep her away from other folks especially during this time of flu and colds as she is very susceptible to catching something with her low counts. It will be a very quiet holiday at home made brighter with the delivery of flowers from our good friend Ann Barker in the USA.
22 December 2003 18:35 Monday
Subject: The weekend got worse...
Gerri feeling a bit better on Saturday was short lived. Sunday she woke to a fever, mouth and throat so sore that she could not swallow (even liquids). We tried soups and Jell-O but the best we could manage was a nutrient drinks or two (which she hates). So first thing this morning we took her to Mount Elizabeth where she spent the day being re-hydrated via IV and being loaded with painkiller and antibiotics.
It was great having Alexis here to look after Gerri while I went to work but certainly not the vacation that we had planned for Alexis' holiday at home. Tomorrow it is back to Mount Elizabeth for the day for more IVs. At least Gerri has not had to check back into the hospital, which was a real concern for her. She is home now resting and having to put up with Alexis and I trying to force-feed her Jell-O, pudding and liquids.
20 December 2003 21:15 Saturday
Subject: Lousy day yesterday...
Gerri carried the pump for 6 days but when she went in for her check-up they decided her blood count was just too low so they removed it, gave her a booster and sent her home. She had to go back again on Thursday for another treatment. Things were going OK until Friday afternoon when the mouth ulcers and stomach cramps started to kick in, not to mention that Gerri could barely walk because of the pain in her feet. Saturday morning Alexis kept Gerri company at home while ran to the doctor to bring home a shopping bag full of medication... The good news is that it brought some relief and by late in the day Gerri felt a bit better.
Joe is the mean old person that keeps forcing her to eat and drink in spite of what Gerri thinks she wants to do... Does not look like much last minute Christmas shopping is going to be on the list this year. The good news is there will be a lot of time to stare at the first "live" Christmas tree we have had in many years. Imported from Denmark!
15 December 2003 21:15 Monday
Subject: Tough week...
On Wednesday the 10th, Gerri had the sub-clavian catheter installed. This time they had to place it on the left side because of the clot in Gerri's left arm... They used ultra-sound to place the tube into her artery in the neck and now she has a 3 inch tube sticking out just next to her arm pit. It is back to saran wrap over the shoulder for showering and daily flushing with different syringes... They had planned on doing the first round of chemo the first day but Gerri's white blood count was too low so they gave her a booster and had her come back on Friday.
Friday afternoon she had her first does of Navelbine administered and they outfitted her with a pump that is pumping in a continuous supply of LF/Sfu through the catheter. Having to carry around the pump and medicine bag in a fanny pack 24/7 is no fun but as usual, Gerri is such a trooper she just goes with the flow! One of the side effects has already appeared in that her taste buds are incredibly sensitive and foods that would not normally affect her cause her to "pucker" (for lack of a better word). She describes it as the feeling you get when you bite into a lemon or something extremely tart that makes you jaw clench tight...
Let us hope that is the only side effect this round... Therefore, now it is time to let the medicine does its thing... More later...
08 December 2003 19:31 Monday
Subject: Gerri Update
Gerri was released from the hospital today.
We were given a supply of syringes full of Fraxiparine, which is used to thin the blood to prevent further clots. Looks like she will need the injections on a daily basis for the long term so we have to be careful of cuts and scrapes. The lump on her arm is still visible but much better and less painful.
We met with the oncologist to discuss next steps. It was decided that the current course of chemo is not doing the job the doctor had hoped for, so they are going to try some new drugs.
Navelbine is administered via IV every week for 3 weeks periods and LV/Sfu will be administered continuously for a week through a portable pump that Gerri will have to carry in a fanny pack. Unfortunately, both drugs can burn the skin so a sub-clavian catheter will have to be reinserted in Gerri's chest. The surgeon will insert the catheter on Wednesday and Gerri will receive her first dose of Navelbine immediately.
We are told the usual side effects from these drugs are oral ulcers, diarrhoea, vomiting etc. Nevertheless, if nothing else, we have learned through all of this. is that you cannot usually depend on the usual side effects happening. It is usually. something else. Something that no one told you about. The good news is Gerri is home and this week's round of panic is over. Thanks for the calls, notes, flowers, prayers and positive thoughts. They did good!
07 December 2003 08:06 Sunday
Subject: Gerri Update
Not much news to report. Yesterday we had visits from the oncologist and haematologist and many tests. Not sure, that Gerri has much blood left in her system, as they seem to take quarts when they draw blood for the tests...
The swelling in Gerri's arm is subsiding, as is the pain. Gerri is much more comfortable now. They will be re-scanning her abdomen to see how the clot is doing later today. Not too sure how much longer Gerri will be in the hospital, I will let you know when I do...
05 December 2003 23:12 Friday
Subject: Gerri Update
What we thought was going to be just another chemo treatment' for Gerri late this afternoon went array. At 4:00 I rushed from the office to the Mount Elizabeth Hospital where Gerri was being admitted.
One of the side effects of the chemo has been the blistering of Gerri's feet (something she has experienced before) but this time there was an added twist of pain and redness in her right arm.
The doctor was quite concerned and as a precaution sent Gerri to the lab for a couple of scans. They decided she has phlebitis in her right arm but further scans found a large blood clot in her abdomen. The clot is just below the arteries that feed the kidney and obviously, below the lungs thus the fear is if the clot breaks up it could travel to those areas and be very serious. Therefore, they are pumping her full of blood thinners and monitoring the situation. I am not sure how long she will be in hospital and will let you know when I do.
Subject: The weekend got worse...
Gerri feeling a bit better on Saturday was short lived. Sunday she woke to a fever, mouth and throat so sore that she could not swallow (even liquids). We tried soups and Jell-O but the best we could manage was a nutrient drinks or two (which she hates). So first thing this morning we took her to Mount Elizabeth where she spent the day being re-hydrated via IV and being loaded with painkiller and antibiotics.
It was great having Alexis here to look after Gerri while I went to work but certainly not the vacation that we had planned for Alexis' holiday at home. Tomorrow it is back to Mount Elizabeth for the day for more IVs. At least Gerri has not had to check back into the hospital, which was a real concern for her. She is home now resting and having to put up with Alexis and I trying to force-feed her Jell-O, pudding and liquids.
20 December 2003 21:15 Saturday
Subject: Lousy day yesterday...
Gerri carried the pump for 6 days but when she went in for her check-up they decided her blood count was just too low so they removed it, gave her a booster and sent her home. She had to go back again on Thursday for another treatment. Things were going OK until Friday afternoon when the mouth ulcers and stomach cramps started to kick in, not to mention that Gerri could barely walk because of the pain in her feet. Saturday morning Alexis kept Gerri company at home while ran to the doctor to bring home a shopping bag full of medication... The good news is that it brought some relief and by late in the day Gerri felt a bit better.
Joe is the mean old person that keeps forcing her to eat and drink in spite of what Gerri thinks she wants to do... Does not look like much last minute Christmas shopping is going to be on the list this year. The good news is there will be a lot of time to stare at the first "live" Christmas tree we have had in many years. Imported from Denmark!
15 December 2003 21:15 Monday
Subject: Tough week...
On Wednesday the 10th, Gerri had the sub-clavian catheter installed. This time they had to place it on the left side because of the clot in Gerri's left arm... They used ultra-sound to place the tube into her artery in the neck and now she has a 3 inch tube sticking out just next to her arm pit. It is back to saran wrap over the shoulder for showering and daily flushing with different syringes... They had planned on doing the first round of chemo the first day but Gerri's white blood count was too low so they gave her a booster and had her come back on Friday.
Friday afternoon she had her first does of Navelbine administered and they outfitted her with a pump that is pumping in a continuous supply of LF/Sfu through the catheter. Having to carry around the pump and medicine bag in a fanny pack 24/7 is no fun but as usual, Gerri is such a trooper she just goes with the flow! One of the side effects has already appeared in that her taste buds are incredibly sensitive and foods that would not normally affect her cause her to "pucker" (for lack of a better word). She describes it as the feeling you get when you bite into a lemon or something extremely tart that makes you jaw clench tight...
Let us hope that is the only side effect this round... Therefore, now it is time to let the medicine does its thing... More later...
08 December 2003 19:31 Monday
Subject: Gerri Update
Gerri was released from the hospital today.
We were given a supply of syringes full of Fraxiparine, which is used to thin the blood to prevent further clots. Looks like she will need the injections on a daily basis for the long term so we have to be careful of cuts and scrapes. The lump on her arm is still visible but much better and less painful.
We met with the oncologist to discuss next steps. It was decided that the current course of chemo is not doing the job the doctor had hoped for, so they are going to try some new drugs.
Navelbine is administered via IV every week for 3 weeks periods and LV/Sfu will be administered continuously for a week through a portable pump that Gerri will have to carry in a fanny pack. Unfortunately, both drugs can burn the skin so a sub-clavian catheter will have to be reinserted in Gerri's chest. The surgeon will insert the catheter on Wednesday and Gerri will receive her first dose of Navelbine immediately.
We are told the usual side effects from these drugs are oral ulcers, diarrhoea, vomiting etc. Nevertheless, if nothing else, we have learned through all of this. is that you cannot usually depend on the usual side effects happening. It is usually. something else. Something that no one told you about. The good news is Gerri is home and this week's round of panic is over. Thanks for the calls, notes, flowers, prayers and positive thoughts. They did good!
07 December 2003 08:06 Sunday
Subject: Gerri Update
Not much news to report. Yesterday we had visits from the oncologist and haematologist and many tests. Not sure, that Gerri has much blood left in her system, as they seem to take quarts when they draw blood for the tests...
The swelling in Gerri's arm is subsiding, as is the pain. Gerri is much more comfortable now. They will be re-scanning her abdomen to see how the clot is doing later today. Not too sure how much longer Gerri will be in the hospital, I will let you know when I do...
05 December 2003 23:12 Friday
Subject: Gerri Update
What we thought was going to be just another chemo treatment' for Gerri late this afternoon went array. At 4:00 I rushed from the office to the Mount Elizabeth Hospital where Gerri was being admitted.
One of the side effects of the chemo has been the blistering of Gerri's feet (something she has experienced before) but this time there was an added twist of pain and redness in her right arm.
The doctor was quite concerned and as a precaution sent Gerri to the lab for a couple of scans. They decided she has phlebitis in her right arm but further scans found a large blood clot in her abdomen. The clot is just below the arteries that feed the kidney and obviously, below the lungs thus the fear is if the clot breaks up it could travel to those areas and be very serious. Therefore, they are pumping her full of blood thinners and monitoring the situation. I am not sure how long she will be in hospital and will let you know when I do.
29 November 2003 11:52 Saturday
Subject: Some Drugs work and some do not...
The last month has been filled with blood counts every few days and many booster shots to bring Gerri's white blood cell counts up. The chemo has played hell with her blood, joints and has caused blistering on her feet making standing for long periods painful. Yesterday the oncologist said she was going to change the regimen again to help alleviate some of the symptoms but more importantly to cope with the new patches of cancer that have appeared. While one medication was working quite well to clear up the older areas new ones have cropped up and appear to be immune to the chemo.
25 October 2003 08:44 Sunday
Subject: Change of drugs...
Trying a combination of drugs now... Faslodex, Doxil and Mitoxantrone. The combination seems to be having a positive impact... Still hard on the blood counts but the Granulocyte injections help bring the counts back up. Lots of tofu on the menu!
18 October 2003 09:06 Saturday
Subject: Longer duration of chemo on the horizon
The chemo is already having a visible effect on the cancer... It is also having a bad effect on Gerri's white blood cell counts, which makes her tire easily. Booster shots, lots of vitamins and protein drinks along with green tea are daily regimens...
04 October 2003 06:15 Saturday
Subject: More difficult times
It has been a difficult couple of weeks...
Gerri caught the flu and that, coupled with the side effects of the chemo caused severe intestinal problems and vomiting which resulted in Gerri having to have a couple of IV's to keep up fluids and deliver antibiotics. Gerri was in bed for a week and was very weak. The doctors also discovered several more patches of cancer so the electron and radiation treatments have been discontinued and Gerri is back on intravenous chemotherapy. Today she had a 4-hour intravenous chemo session...
One-step forward and ten steps back...
Subject: Some Drugs work and some do not...
The last month has been filled with blood counts every few days and many booster shots to bring Gerri's white blood cell counts up. The chemo has played hell with her blood, joints and has caused blistering on her feet making standing for long periods painful. Yesterday the oncologist said she was going to change the regimen again to help alleviate some of the symptoms but more importantly to cope with the new patches of cancer that have appeared. While one medication was working quite well to clear up the older areas new ones have cropped up and appear to be immune to the chemo.
25 October 2003 08:44 Sunday
Subject: Change of drugs...
Trying a combination of drugs now... Faslodex, Doxil and Mitoxantrone. The combination seems to be having a positive impact... Still hard on the blood counts but the Granulocyte injections help bring the counts back up. Lots of tofu on the menu!
18 October 2003 09:06 Saturday
Subject: Longer duration of chemo on the horizon
The chemo is already having a visible effect on the cancer... It is also having a bad effect on Gerri's white blood cell counts, which makes her tire easily. Booster shots, lots of vitamins and protein drinks along with green tea are daily regimens...
04 October 2003 06:15 Saturday
Subject: More difficult times
It has been a difficult couple of weeks...
Gerri caught the flu and that, coupled with the side effects of the chemo caused severe intestinal problems and vomiting which resulted in Gerri having to have a couple of IV's to keep up fluids and deliver antibiotics. Gerri was in bed for a week and was very weak. The doctors also discovered several more patches of cancer so the electron and radiation treatments have been discontinued and Gerri is back on intravenous chemotherapy. Today she had a 4-hour intravenous chemo session...
One-step forward and ten steps back...
20 September 2003 09:25 Saturday
Subject: Just when you thought, the rain had stopped...
Much has transpired since my last update... I am disappointed to have to report that a couple of weeks ago the cancer reappeared. The good/bad news is that it is in the same area (left side), good in that it has not spread to other areas, bad in that after all the chemo and surgery it is still not going away.
After countless additional tests (body, scan, head, lower track, blood etc) and another visit to Johns Hopkins it was determined that, the cancer is in the skin layer and the best course of action will be a longer course of chemo than normal. The experts feel the treatments that Gerri has been through were effective but perhaps they should have been longer in duration.
For the past 10 days, Gerri has undergone electron treatments on the left side as a prelude to daily 3D radiation starting next week. She is back on oral chemo, which makes her tire easily and gives her a bad stomach. The doctors are also using a relatively new drug/hormone treatment that is injected and it seeks out the cancer cells rather than kill white cells as regular chemo does.
Therefore, that is where we are now...
Subject: Just when you thought, the rain had stopped...
Much has transpired since my last update... I am disappointed to have to report that a couple of weeks ago the cancer reappeared. The good/bad news is that it is in the same area (left side), good in that it has not spread to other areas, bad in that after all the chemo and surgery it is still not going away.
After countless additional tests (body, scan, head, lower track, blood etc) and another visit to Johns Hopkins it was determined that, the cancer is in the skin layer and the best course of action will be a longer course of chemo than normal. The experts feel the treatments that Gerri has been through were effective but perhaps they should have been longer in duration.
For the past 10 days, Gerri has undergone electron treatments on the left side as a prelude to daily 3D radiation starting next week. She is back on oral chemo, which makes her tire easily and gives her a bad stomach. The doctors are also using a relatively new drug/hormone treatment that is injected and it seeks out the cancer cells rather than kill white cells as regular chemo does.
Therefore, that is where we are now...
10 August 2003 08:43 Sunday
Subject: No News is the Best News!
Gerri is doing great. After a great break in the USA Gerri returned to Singapore with her sister Kathy and they spent the last two weeks "rediscovering" Singapore. Gerri feels and looks great. She did have to pay a visit to the surgeon upon her return to have some fluid aspirated from the left side but other than that, everything looks great. Next week she will have to visit the oncologist and see what the next course of action will be but it was a relaxing and very enjoyable break from the doctors and hospitals over the past 7 weeks.
20 June 2003 07:45 Thursday
Subject: Things are looking good!
Gerri is recovering very nicely from the surgery. There will be some radiation in the near future but for the time being, the doctors just want Gerri to heal and relax. We are heading out for a few weeks of holiday to see family and friends and generally do nothing... We have never gone on a vacation with no plans so this will be a first. Will have pictures and I am sure a few stories to share upon our return! I will be check email occasionally but if we do not get back to you right away please understand.
Subject: No News is the Best News!
Gerri is doing great. After a great break in the USA Gerri returned to Singapore with her sister Kathy and they spent the last two weeks "rediscovering" Singapore. Gerri feels and looks great. She did have to pay a visit to the surgeon upon her return to have some fluid aspirated from the left side but other than that, everything looks great. Next week she will have to visit the oncologist and see what the next course of action will be but it was a relaxing and very enjoyable break from the doctors and hospitals over the past 7 weeks.
20 June 2003 07:45 Thursday
Subject: Things are looking good!
Gerri is recovering very nicely from the surgery. There will be some radiation in the near future but for the time being, the doctors just want Gerri to heal and relax. We are heading out for a few weeks of holiday to see family and friends and generally do nothing... We have never gone on a vacation with no plans so this will be a first. Will have pictures and I am sure a few stories to share upon our return! I will be check email occasionally but if we do not get back to you right away please understand.
07 June 2003 08:32 Saturday
Subject: Latest on Gerri - 7 June
In a bit of a rush but wanted to give an update on Gerri.
The surgery went fine, there was some last minute concern about additional CEA counts discovered so there was a pathologist and oncologist present during the surgery. Gerri was in the operating room for almost four hours. The surgeon reported the mastectomy went fine but they did take more of the lymph nodes on the right side than they had originally planned.
Gerri is home resting comfortably. We are heading to the surgeon's office this morning to have dressings changed and blood checked. The trick is now to get the CEA levels down, which we hope, will happen naturally now that the diseased cells have been removed..
Gerri looks great, has good colour, more discomfort than pain and has good mobility in her right arm in spite of the fact that they had to take part of the pectoral muscle when they removed the remains of the tumour.
Wish we had more definitive news to report to you. but this is the best we can do at this point. The important thing is Gerri is home and looking good!
More later.
Oh and thanks for the flowers, emails, cards, prayers and calls. Knowing there are so many people pulling for us is truly a comfort!
Subject: Latest on Gerri - 7 June
In a bit of a rush but wanted to give an update on Gerri.
The surgery went fine, there was some last minute concern about additional CEA counts discovered so there was a pathologist and oncologist present during the surgery. Gerri was in the operating room for almost four hours. The surgeon reported the mastectomy went fine but they did take more of the lymph nodes on the right side than they had originally planned.
Gerri is home resting comfortably. We are heading to the surgeon's office this morning to have dressings changed and blood checked. The trick is now to get the CEA levels down, which we hope, will happen naturally now that the diseased cells have been removed..
Gerri looks great, has good colour, more discomfort than pain and has good mobility in her right arm in spite of the fact that they had to take part of the pectoral muscle when they removed the remains of the tumour.
Wish we had more definitive news to report to you. but this is the best we can do at this point. The important thing is Gerri is home and looking good!
More later.
Oh and thanks for the flowers, emails, cards, prayers and calls. Knowing there are so many people pulling for us is truly a comfort!
02 June 2003 08:02 Monday
Subject: Latest on Gerri
We have been on a bit of a roller coaster concerning Gerri's condition over the past several days.
10 days ago, the oncologist said to take a weeklong break (after the last chemo) then go see the surgeon.
Early in the week, the surgeon was giving a complete re-think about the necessity for surgery as the chemo had done such a good job. She wanted further tests and discussions with the oncologist who was out of Singapore for two weeks attending conferences in Italy and Chicago.
When we got the oncologist on a conference call with the surgeon, she (the oncologist) was adamant about going to surgery but also wanted further tests and decided to consult with a panel of experts in the USA who were all attending the Cancer conference in Chicago.
Last Wednesday Gerri had just about every bone and organ scanned (literally) along with a battery of other tests.
Saturday we met with the surgeon again and suddenly the surgeon was very worried about her CEA level being too high (CEA is a count in the blood that indicates cancer is prevalent). She ordered more blood tests and placed a request for a call from the oncologist who was now in the USA.
Sometime between Saturday afternoon and Monday morning the oncologist met with the specialists in Chicago and conferred with the surgeon here in Singapore who called us to come see her today.
After all the tests and recommendations from several specialists, the decision was reached to proceed with surgery at Gleneagles Hospital first thing tomorrow morning. Gerri will have a complete mastectomy of the left breast and they will remove some suspicious lymph nodes from the right side. Additional chemo and radiation are likely to follow.
We need all the positive thoughts you can muster! I will give you an update as soon as I know more.
Subject: Latest on Gerri
We have been on a bit of a roller coaster concerning Gerri's condition over the past several days.
10 days ago, the oncologist said to take a weeklong break (after the last chemo) then go see the surgeon.
Early in the week, the surgeon was giving a complete re-think about the necessity for surgery as the chemo had done such a good job. She wanted further tests and discussions with the oncologist who was out of Singapore for two weeks attending conferences in Italy and Chicago.
When we got the oncologist on a conference call with the surgeon, she (the oncologist) was adamant about going to surgery but also wanted further tests and decided to consult with a panel of experts in the USA who were all attending the Cancer conference in Chicago.
Last Wednesday Gerri had just about every bone and organ scanned (literally) along with a battery of other tests.
Saturday we met with the surgeon again and suddenly the surgeon was very worried about her CEA level being too high (CEA is a count in the blood that indicates cancer is prevalent). She ordered more blood tests and placed a request for a call from the oncologist who was now in the USA.
Sometime between Saturday afternoon and Monday morning the oncologist met with the specialists in Chicago and conferred with the surgeon here in Singapore who called us to come see her today.
After all the tests and recommendations from several specialists, the decision was reached to proceed with surgery at Gleneagles Hospital first thing tomorrow morning. Gerri will have a complete mastectomy of the left breast and they will remove some suspicious lymph nodes from the right side. Additional chemo and radiation are likely to follow.
We need all the positive thoughts you can muster! I will give you an update as soon as I know more.
25 May 2003 08:02 Sunday
Subject: Where are we? Good Question!
Many people have been asking what is happening... We wish we had a more definitive answer. A week ago, the oncologist said things were clear enough for Gerri to go visit the surgeon. Therefore, we went with expectations that the surgery would happen immediately. Now the surgeon is saying that things are so clear (no visible cancer) that she questions the need for surgery. Under usual circumstances we should be elated with this news but we are concerned that surgery was avoided the first time and is Gerri going to be back in the same situation a year or two from now should the cancer re-appear?
Unfortunately, our oncologist is out of the country attending a medical conference so she is not easily reached to discuss it. We did send a fax and she came back to us and said she is going to do a white paper on Gerri's case and present it to her associates in the USA to get recommendation. To be on the safe side Gerri will be doing another round a chemo this week... Another couple of weeks of wait and see.
Subject: Where are we? Good Question!
Many people have been asking what is happening... We wish we had a more definitive answer. A week ago, the oncologist said things were clear enough for Gerri to go visit the surgeon. Therefore, we went with expectations that the surgery would happen immediately. Now the surgeon is saying that things are so clear (no visible cancer) that she questions the need for surgery. Under usual circumstances we should be elated with this news but we are concerned that surgery was avoided the first time and is Gerri going to be back in the same situation a year or two from now should the cancer re-appear?
Unfortunately, our oncologist is out of the country attending a medical conference so she is not easily reached to discuss it. We did send a fax and she came back to us and said she is going to do a white paper on Gerri's case and present it to her associates in the USA to get recommendation. To be on the safe side Gerri will be doing another round a chemo this week... Another couple of weeks of wait and see.
04 May 2003 08:02 Sunday
Subject: Continued frustration the past several weeks but light can be seen through the tunnel...
Gerri has been going through her chemo like a champion. The good news is that it is doing a great job on the cancer! On the surface, you cannot see any signs of it and we hope that this will be her last week of chemo. While doing a good job of killing the cancer the chemo has produced some very tough side effects that are taking their toll on Gerri. Rashes, blisters, bone ache, hair loss, difficulty with standing and walking to name just a few... The rashes and blisters are on the feet, legs and hands... Soaking in Epson salt and a crash series of Vitamin B6 are helping. The B6 also helped with the pain when Gerri was standing. Ironically, it hurt her more to standstill than to keep walking... The constant pressure on one spot was the problem.
Next week we are off to see the surgeon and our oncologist is confident that surgery is right around the corner however, there is an underlying concern about putting Gerri in the hospital because of SARS... Will keep you updated!
Subject: Continued frustration the past several weeks but light can be seen through the tunnel...
Gerri has been going through her chemo like a champion. The good news is that it is doing a great job on the cancer! On the surface, you cannot see any signs of it and we hope that this will be her last week of chemo. While doing a good job of killing the cancer the chemo has produced some very tough side effects that are taking their toll on Gerri. Rashes, blisters, bone ache, hair loss, difficulty with standing and walking to name just a few... The rashes and blisters are on the feet, legs and hands... Soaking in Epson salt and a crash series of Vitamin B6 are helping. The B6 also helped with the pain when Gerri was standing. Ironically, it hurt her more to standstill than to keep walking... The constant pressure on one spot was the problem.
Next week we are off to see the surgeon and our oncologist is confident that surgery is right around the corner however, there is an underlying concern about putting Gerri in the hospital because of SARS... Will keep you updated!
08 March 2003 09:15 Saturday
Subject: Second Opinion from Johns Hopkins Experts
The past couple of weeks were generally positive but somewhat frustrating. We seemed to have things in control to the point that the Oncologist wanted Gerri to see the surgeon to consider moving ahead with the surgery. The surgeon on the other hand was concerned that the cancer is still too wide spread and would not attempt the surgery at this time. She suggested another couple of rounds of chemo.
Having learned that Johns Hopkins has recently opened a research clinic here in Singapore we decided it was time to get a second opinion to at least allay any concerns we had about whether we were taking the best course of action. The specialist at Johns Hopkins turned out to an American and very easy to talk to. We were quite surprised how much time he spent with us answering questions, examining Gerri and giving advice. We were very relieved when he said that he believed our Oncologist and surgeon were both taking the best course of action and other than suggesting a possible different chemo combination, he felt we were in good hands.
So... on Monday Gerri starts another round of chemo... She is such a trooper and keeps rolling with the punches. I wish I had her strength!
Subject: Second Opinion from Johns Hopkins Experts
The past couple of weeks were generally positive but somewhat frustrating. We seemed to have things in control to the point that the Oncologist wanted Gerri to see the surgeon to consider moving ahead with the surgery. The surgeon on the other hand was concerned that the cancer is still too wide spread and would not attempt the surgery at this time. She suggested another couple of rounds of chemo.
Having learned that Johns Hopkins has recently opened a research clinic here in Singapore we decided it was time to get a second opinion to at least allay any concerns we had about whether we were taking the best course of action. The specialist at Johns Hopkins turned out to an American and very easy to talk to. We were quite surprised how much time he spent with us answering questions, examining Gerri and giving advice. We were very relieved when he said that he believed our Oncologist and surgeon were both taking the best course of action and other than suggesting a possible different chemo combination, he felt we were in good hands.
So... on Monday Gerri starts another round of chemo... She is such a trooper and keeps rolling with the punches. I wish I had her strength!
15 February 2003 08:27 Saturday
Subject: Difficulties
The past few weeks have had some real ups and downs. One day Gerri feels pretty good the next she has flu like symptoms (achy, tired) come to find out that it was a bad batch of chemo and other patients were having the same problem. A new batch was given to her on Thursday... generally it still makes her very tired but not some of the other side effects usually associated with chemo. The Oncologist is very pleased with the results so far and wants to schedule an appointment with our surgeon in two weeks. While not happy about another surgery, we are confident in our doctors' recommendation that this is the best course of action to take. That is all for now...
26 January 2003 15:07 Sunday
Subject: Full on chemo for the past few weeks...
Much has happened since our last entry... Upon further tests, it was found that the biopsy was not clear and cancer was found in the same breast. They installed another catheter in Gerri's chest and she has been on full chemo for the past few weeks. They hope to contain the cancer then will go back in surgically to attempt to get rid of it. Will keep you appraised.
25 December 2002 15:50 Wednesday
Subject: Finishing another round of oral chemo
Last night (Christmas Eve) Gerri finished the latest round of oral chemo. A few days of rest then back for more tests on Monday... Will let you know.
14 December 2002 15:50 Saturday
Subject: Biopsy Clear
Gerri had a biopsy done on her breast where the doctors suspected there might be a problem but we are pleased to report that the areas turned out clear. Gerri is still on oral chemo and will remain on it for a while. The source of the cancer cells have still not been sourced but the good news is that are not heavily concentrated in any one area. ...
28 November 2002 13:20 Thursday
Subject: Back on Oral Chemo
We are extremely disappointed to have to report that Gerri has had to go back on oral chemo. Recent tests indicate that there are new cancer cells floating in her system and must be eliminated. The good news is the cells have not attached to anything but the fact remains is that they are there and must be eliminated. The oral chemo is (by comparison...) relatively mild but it does knock the wind out of Gerri's sails very easily. The doctors are monitoring the situation and we should have more to report in a few weeks time.
1 February 2002 15:27 Friday
Subject: Post Check-Up Report
60 day check-up including ultra-sound, liver scan everything looking great! Happy campers here!
30 December 2001 14:30 Sunday
Subject: All quiet on the on the news front!
We have had a couple notes requesting updates about Gerri... We are going with the "no news is good news" theory. Gerri is doing great. Is off all medication except the Arimidex (which we are pleased to report was just approved for use by the FDA, good to see that Singapore is on the cutting edge...). She has already gone back to see her hair stylist! Life is good!
08 December 2001 15:54 Saturday
Subject: Pictures from Thanksgiving and Gerri's new "do
Joe and Gerri celebrated a quiet Thanksgiving at home... Left over turkey for weeks...
24 November 2001 18:06 Saturday
Subject: Last radiation treatment yesterday!
Gerri has a big smile on her face. Radiation is over!
Subject: Difficulties
The past few weeks have had some real ups and downs. One day Gerri feels pretty good the next she has flu like symptoms (achy, tired) come to find out that it was a bad batch of chemo and other patients were having the same problem. A new batch was given to her on Thursday... generally it still makes her very tired but not some of the other side effects usually associated with chemo. The Oncologist is very pleased with the results so far and wants to schedule an appointment with our surgeon in two weeks. While not happy about another surgery, we are confident in our doctors' recommendation that this is the best course of action to take. That is all for now...
26 January 2003 15:07 Sunday
Subject: Full on chemo for the past few weeks...
Much has happened since our last entry... Upon further tests, it was found that the biopsy was not clear and cancer was found in the same breast. They installed another catheter in Gerri's chest and she has been on full chemo for the past few weeks. They hope to contain the cancer then will go back in surgically to attempt to get rid of it. Will keep you appraised.
25 December 2002 15:50 Wednesday
Subject: Finishing another round of oral chemo
Last night (Christmas Eve) Gerri finished the latest round of oral chemo. A few days of rest then back for more tests on Monday... Will let you know.
14 December 2002 15:50 Saturday
Subject: Biopsy Clear
Gerri had a biopsy done on her breast where the doctors suspected there might be a problem but we are pleased to report that the areas turned out clear. Gerri is still on oral chemo and will remain on it for a while. The source of the cancer cells have still not been sourced but the good news is that are not heavily concentrated in any one area. ...
28 November 2002 13:20 Thursday
Subject: Back on Oral Chemo
We are extremely disappointed to have to report that Gerri has had to go back on oral chemo. Recent tests indicate that there are new cancer cells floating in her system and must be eliminated. The good news is the cells have not attached to anything but the fact remains is that they are there and must be eliminated. The oral chemo is (by comparison...) relatively mild but it does knock the wind out of Gerri's sails very easily. The doctors are monitoring the situation and we should have more to report in a few weeks time.
1 February 2002 15:27 Friday
Subject: Post Check-Up Report
60 day check-up including ultra-sound, liver scan everything looking great! Happy campers here!
30 December 2001 14:30 Sunday
Subject: All quiet on the on the news front!
We have had a couple notes requesting updates about Gerri... We are going with the "no news is good news" theory. Gerri is doing great. Is off all medication except the Arimidex (which we are pleased to report was just approved for use by the FDA, good to see that Singapore is on the cutting edge...). She has already gone back to see her hair stylist! Life is good!
08 December 2001 15:54 Saturday
Subject: Pictures from Thanksgiving and Gerri's new "do
Joe and Gerri celebrated a quiet Thanksgiving at home... Left over turkey for weeks...
24 November 2001 18:06 Saturday
Subject: Last radiation treatment yesterday!
Gerri has a big smile on her face. Radiation is over!
18 November 2001 0625 Sunday
Subject: Good meeting with the Oncologist!
Went in and spent some time with the Oncologist yesterday and we are very pleased with the status!
There are only five more radiation treatments and they will be done by next Friday. Gerri needs to keep up the daily injections and "mega" vitamins until mid-December then she can stop. She can stop wearing the support sock (hip-foot) and only needs to wear it when travelling long distances. The doc believes the thrombosis is under control now and none of the medication Gerri takes now should aggravate the condition.
Gerri now starts taking Arimidex, which is a selective oestrogen receptor modifier". In simple terms, it deprives cancer cells of oestrogen to prevent future cancer. Gerri will be taking this for the next 2 years.
When we asked if we could say we are now cancer free the answer was not a resounding "yes" which is what we would liked to have heard... but it was, it will take a couple years before we can definitively say yes. However, today all signs are very positive and Gerri has reacted very well to the treatments. The prognosis is excellent! Therefore, in my book that is as close to a yes as we can get today and we are happy with that.
We then went on to talk about what precautions we should take in the future. Eat lots of vegetables, fish, chicken (the usual answers...) but how is this for a turn of events? The Doc just attended a "senior cancer specialist conference" in the USA and the latest is ... Beef is OK again, taken in moderation but it should not be over-cooked. RARE IS BEST! Come to find out that over cooking (especially when BBQ'ing) increases carcinogens! All these years Gerri has yelled at me when I ate raw chop meat (i.e.: when I'm making meatballs or something, it is not as if she has caught me with a raw t-bone hanging out of my mouth...) saying it was bad for me... and now the doctors say under cooked beef is best. Seems that the French and Japanese who eat many raw meats (steak tartar, Kobe beef, sushi etc.) and have the occasional glass of wine/sake had it right all along! So tonight for dinner, we are popping a bottle of wine with our steak tartar and steamed vegetable platter!
Subject: Good meeting with the Oncologist!
Went in and spent some time with the Oncologist yesterday and we are very pleased with the status!
There are only five more radiation treatments and they will be done by next Friday. Gerri needs to keep up the daily injections and "mega" vitamins until mid-December then she can stop. She can stop wearing the support sock (hip-foot) and only needs to wear it when travelling long distances. The doc believes the thrombosis is under control now and none of the medication Gerri takes now should aggravate the condition.
Gerri now starts taking Arimidex, which is a selective oestrogen receptor modifier". In simple terms, it deprives cancer cells of oestrogen to prevent future cancer. Gerri will be taking this for the next 2 years.
When we asked if we could say we are now cancer free the answer was not a resounding "yes" which is what we would liked to have heard... but it was, it will take a couple years before we can definitively say yes. However, today all signs are very positive and Gerri has reacted very well to the treatments. The prognosis is excellent! Therefore, in my book that is as close to a yes as we can get today and we are happy with that.
We then went on to talk about what precautions we should take in the future. Eat lots of vegetables, fish, chicken (the usual answers...) but how is this for a turn of events? The Doc just attended a "senior cancer specialist conference" in the USA and the latest is ... Beef is OK again, taken in moderation but it should not be over-cooked. RARE IS BEST! Come to find out that over cooking (especially when BBQ'ing) increases carcinogens! All these years Gerri has yelled at me when I ate raw chop meat (i.e.: when I'm making meatballs or something, it is not as if she has caught me with a raw t-bone hanging out of my mouth...) saying it was bad for me... and now the doctors say under cooked beef is best. Seems that the French and Japanese who eat many raw meats (steak tartar, Kobe beef, sushi etc.) and have the occasional glass of wine/sake had it right all along! So tonight for dinner, we are popping a bottle of wine with our steak tartar and steamed vegetable platter!
As far as Gerri was concerned, the best news is that after this week she does not have to see a doctor until mid-January. For someone who has been seeing doctors literally every day for the past year... That is the best news! For all our American friends and family... Happy Thanksgiving! We have plenty to be thankful for this year!
04 November 2001 09:35 Sunday
Subject: Almost there....
4 weeks of radiation done and only two more to go... No side effects to report. Bit of suntan but nothing out of the ordinary. Doctors are all happy! We are almost home free!
04 November 2001 09:35 Sunday
Subject: Almost there....
4 weeks of radiation done and only two more to go... No side effects to report. Bit of suntan but nothing out of the ordinary. Doctors are all happy! We are almost home free!
20 October 2001 07:30 Saturday
Subject: A new phase
I know... it has been a while since I last updated... Sorry! I have received several reminders... My easy out is to say... No news is good news!
Shortly after our last entry, we took off for the USA (see Joe's Ramblings for some details). During the trip, Gerri had to go on oral chemo as the radiation was delayed. The good news is that other than some occasional upset stomachs and being tired, the side effects from the chemo were relatively light. The daily injections for the thrombosis continued and most likely will continue for several months. We were very surprised with all the increased security and screening at the airports... not once were we asked to open the cooler bag that contained a couple dozen syringes and yet they were worried about a nail clipper...
Gerri came back to Singapore on 7 October and jumped right into the radiation treatment. She has to go to the Cancer Centre in the basement of Glen Eagles Hospital everyday. She is taken into a room closed off from the hospital with a huge lead lined door. The door is about 9 inches thick and open and closes electronically. Once they have the equipment all set-up and pointed in the right direction, Gerri has to hold on to a handle in a very awkward position while the doctor and technicians all run out of the room while the big door closes. Buzzers buzz, red lights flash and they all look intently at a computer screen. A minute or two later the lights go off, buzzer stops and door starts opening. They run back in, reposition the equipment, run back out and all the above starts over again. This happens three times.
So far, there have not been any visible or physical symptoms. The only thing Gerri mentions is that her arm is sore but we think that is from holding onto the handle. They tell us that in a few weeks she will have what would appear to be mild sunburn. Two weeks down and four to go.
Gerri also decided she was tired of wearing hats so when she arrived back in Singapore she put them away. Her hair is about 1/4 of an inch long now and coming in nicely. We have heard so many stories from different people who tell how it comes back curly, straight, a different colour, softer, harder... We are waiting and watching to see what our story will be when we talk about this in the future...
Subject: A new phase
I know... it has been a while since I last updated... Sorry! I have received several reminders... My easy out is to say... No news is good news!
Shortly after our last entry, we took off for the USA (see Joe's Ramblings for some details). During the trip, Gerri had to go on oral chemo as the radiation was delayed. The good news is that other than some occasional upset stomachs and being tired, the side effects from the chemo were relatively light. The daily injections for the thrombosis continued and most likely will continue for several months. We were very surprised with all the increased security and screening at the airports... not once were we asked to open the cooler bag that contained a couple dozen syringes and yet they were worried about a nail clipper...
Gerri came back to Singapore on 7 October and jumped right into the radiation treatment. She has to go to the Cancer Centre in the basement of Glen Eagles Hospital everyday. She is taken into a room closed off from the hospital with a huge lead lined door. The door is about 9 inches thick and open and closes electronically. Once they have the equipment all set-up and pointed in the right direction, Gerri has to hold on to a handle in a very awkward position while the doctor and technicians all run out of the room while the big door closes. Buzzers buzz, red lights flash and they all look intently at a computer screen. A minute or two later the lights go off, buzzer stops and door starts opening. They run back in, reposition the equipment, run back out and all the above starts over again. This happens three times.
So far, there have not been any visible or physical symptoms. The only thing Gerri mentions is that her arm is sore but we think that is from holding onto the handle. They tell us that in a few weeks she will have what would appear to be mild sunburn. Two weeks down and four to go.
Gerri also decided she was tired of wearing hats so when she arrived back in Singapore she put them away. Her hair is about 1/4 of an inch long now and coming in nicely. We have heard so many stories from different people who tell how it comes back curly, straight, a different colour, softer, harder... We are waiting and watching to see what our story will be when we talk about this in the future...
26 August 2001 10:22 Sunday
Subject: A long week
A few more side effects than expected. Nausea, perpetually tired, aches and pains. Just seems like we report the same thing repeatedly. We heard a few comments from other people who had gone to the radiologist that Gerri visited and after hearing about him, we decided to get another opinion/radiologist. Gerri met the new doctor and liked him very much. Radiology will start 8 October.
Subject: A long week
A few more side effects than expected. Nausea, perpetually tired, aches and pains. Just seems like we report the same thing repeatedly. We heard a few comments from other people who had gone to the radiologist that Gerri visited and after hearing about him, we decided to get another opinion/radiologist. Gerri met the new doctor and liked him very much. Radiology will start 8 October.
11 August 2001 14:20 Saturday
Subject: A little more frustration
Several visits to various doctors again this week. The fluids had to be extracted two more times and it looks like more will have to be removed on Monday. The incisions are almost completely healed but Gerri has no feeling under her arm. The surgeon says it could take as long as six months to get the feeling back.
The oral chemo started this weekend. Gerri came home from the doctor with a shopping bag full of medication and vitamins. She has to take no less than a dozen pills per day and is still getting the claxine injections. We were briefed that for several days before and after our US trip she will have to start getting two injections daily to be sure, there are no problems with the thrombosis. Not to sure about the side effects of the oral chemo yet... We were told that some of them could be nausea and the palms of her hands turning red... It just never seems to stop!
On a more positive note, Gerri starts teaching again this coming week so that will give her something to do and take her mind off some of the hassles she is going through.
Subject: A little more frustration
Several visits to various doctors again this week. The fluids had to be extracted two more times and it looks like more will have to be removed on Monday. The incisions are almost completely healed but Gerri has no feeling under her arm. The surgeon says it could take as long as six months to get the feeling back.
The oral chemo started this weekend. Gerri came home from the doctor with a shopping bag full of medication and vitamins. She has to take no less than a dozen pills per day and is still getting the claxine injections. We were briefed that for several days before and after our US trip she will have to start getting two injections daily to be sure, there are no problems with the thrombosis. Not to sure about the side effects of the oral chemo yet... We were told that some of them could be nausea and the palms of her hands turning red... It just never seems to stop!
On a more positive note, Gerri starts teaching again this coming week so that will give her something to do and take her mind off some of the hassles she is going through.
04 August 2001 17:45 Saturday
Subject: Minor setback
A couple of doctor visits this week... The surgeon removed all the bandages and had to remove some fluid with a syringe (ouch!) but was pleased with the progress. The oncologist prescribes more claxine for daily injections for the thrombosis. Gerri visited with the radiologist but he decided it was too early to start radiation. He wants Gerri's incisions to heal better before starting and it needs to be continuous for 6 weeks, but as we are heading stateside in September this is not possible.
So... they have decided to give Gerri oral chemo for the next 8 weeks and then when we come back from the USA Gerri will then get radiation. We will find out about the side effects of oral chemo next week. Seems like 10 steps forward and three steps back.... Frustrating!
Subject: Minor setback
A couple of doctor visits this week... The surgeon removed all the bandages and had to remove some fluid with a syringe (ouch!) but was pleased with the progress. The oncologist prescribes more claxine for daily injections for the thrombosis. Gerri visited with the radiologist but he decided it was too early to start radiation. He wants Gerri's incisions to heal better before starting and it needs to be continuous for 6 weeks, but as we are heading stateside in September this is not possible.
So... they have decided to give Gerri oral chemo for the next 8 weeks and then when we come back from the USA Gerri will then get radiation. We will find out about the side effects of oral chemo next week. Seems like 10 steps forward and three steps back.... Frustrating!
30 July 2001 15:37 Monday
Subject: First follow-up
Back to the Oncology Centre today. The oncologist is extremely pleased with the events/progress of the past few days and was most impressed with Gerri's fortitude and ability to just keep pushing forward! Right now, the plan is to start radiation treatments next week, for several weeks, to make sure everything is mopped up. The claxine will continue (double doses for this week) then go back to one dose daily for the next several weeks.
An interesting side note... When the oncologist was told about all the concerns and extra treatments given Gerri for the thrombosis at the hospital she made an interesting comment. She said, "I think they were being overly cautious because you are American". I didn't take her meaning to be that they take less care of Singaporeans or other nationals but rather that doctors here have experienced and/or heard about how typically quick Americans are to bring lawsuits when anything goes wrong, so they tend to take extraordinary, maybe overly cautious and certainly more expensive routes to avoid any complications. While I am certainly glad they took such excellent care of Gerri, I just thought it an interesting comment to see how Americans are perceived by others.
Back to the surgeon on Wed for a post-operative check. Looks like blue skies ahead!
29 July 2001 13:26 Sunday
Subject: Home!
In true hospital fashion, the checkout process is usually worse than checking in... Drains removed early this morning, cardiologist and haematologist did their send off checkups before 9am... Of course, the only person who could approve Gerri's release was the surgeon who did not showed up until 12:30. Last minute vital signs, check-up, visit to the cashier and finally "the release".
We walked out with a couple of huge floral arrangements, all the scans and a bag full of medication. I was laughing to Gerri that we raced home only to prop her up in her favourite chair to rest again but as Gerri put it, at least she is resting in her own home. Follow-up visits booked on Mon, Tues and Wed but for the time being we are very happy campers! Welcome home Gerri!
Subject: First follow-up
Back to the Oncology Centre today. The oncologist is extremely pleased with the events/progress of the past few days and was most impressed with Gerri's fortitude and ability to just keep pushing forward! Right now, the plan is to start radiation treatments next week, for several weeks, to make sure everything is mopped up. The claxine will continue (double doses for this week) then go back to one dose daily for the next several weeks.
An interesting side note... When the oncologist was told about all the concerns and extra treatments given Gerri for the thrombosis at the hospital she made an interesting comment. She said, "I think they were being overly cautious because you are American". I didn't take her meaning to be that they take less care of Singaporeans or other nationals but rather that doctors here have experienced and/or heard about how typically quick Americans are to bring lawsuits when anything goes wrong, so they tend to take extraordinary, maybe overly cautious and certainly more expensive routes to avoid any complications. While I am certainly glad they took such excellent care of Gerri, I just thought it an interesting comment to see how Americans are perceived by others.
Back to the surgeon on Wed for a post-operative check. Looks like blue skies ahead!
29 July 2001 13:26 Sunday
Subject: Home!
In true hospital fashion, the checkout process is usually worse than checking in... Drains removed early this morning, cardiologist and haematologist did their send off checkups before 9am... Of course, the only person who could approve Gerri's release was the surgeon who did not showed up until 12:30. Last minute vital signs, check-up, visit to the cashier and finally "the release".
We walked out with a couple of huge floral arrangements, all the scans and a bag full of medication. I was laughing to Gerri that we raced home only to prop her up in her favourite chair to rest again but as Gerri put it, at least she is resting in her own home. Follow-up visits booked on Mon, Tues and Wed but for the time being we are very happy campers! Welcome home Gerri!
28 July 2001 21:24 Saturday
Subject: Better Day!
The cardiologist had Gerri's legs scanned again today to check for new blood clots. Great news... no new ones so the thrombosis appears to be under control. The surgeon came in this afternoon to change the dressings and said they would take the drain out tomorrow and Gerri will most likely be able to come home. This put a smile on our faces! Had a chance to see a couple of the incisions while the surgeon checked them over and was amazed to learn that they did not use stitches... The surgeon said they "glued" the incisions together. Water proof and invisible. Really is incredible what they can do these days. The only ones that made me cringed a bit were the incisions under her arm as they were much longer than I expected.
Gerri has great colour in her face, very little pain and can get around pretty well (except for the couple of feet of tubing and a drain bottle, she has to transport with her). I "took Gerri out to dinner", well actually, I went to the American Club and got a couple of club sandwiches, a salad and we had a picnic in her hospital room... Gleneagles is just like every other hospital in the world and serves gruel. I know Gerri is feeling better because she would not eat the hospital food and was looking for something better...
We actually had a nice calm and relaxed day! What a great change!
Subject: Better Day!
The cardiologist had Gerri's legs scanned again today to check for new blood clots. Great news... no new ones so the thrombosis appears to be under control. The surgeon came in this afternoon to change the dressings and said they would take the drain out tomorrow and Gerri will most likely be able to come home. This put a smile on our faces! Had a chance to see a couple of the incisions while the surgeon checked them over and was amazed to learn that they did not use stitches... The surgeon said they "glued" the incisions together. Water proof and invisible. Really is incredible what they can do these days. The only ones that made me cringed a bit were the incisions under her arm as they were much longer than I expected.
Gerri has great colour in her face, very little pain and can get around pretty well (except for the couple of feet of tubing and a drain bottle, she has to transport with her). I "took Gerri out to dinner", well actually, I went to the American Club and got a couple of club sandwiches, a salad and we had a picnic in her hospital room... Gleneagles is just like every other hospital in the world and serves gruel. I know Gerri is feeling better because she would not eat the hospital food and was looking for something better...
We actually had a nice calm and relaxed day! What a great change!
27 July 2001 20:47 Friday
Subject: Surgery completed
At 8:30, they scanned Gerri's breast again and marked the locations for the surgeon. Do not know what I expected but certainly, something more sophisticated than them simply whipping out a magic-marker and putting X's on O's around her chest and underarm...
The surgeon told me the operation would take 1 1/2 hours and she would come talk to me once complete. Rolled Gerri into the operating room at 9:30. I was patient for the first 1 1/2 as directed, started pacing at 2 hours, started muttering and really getting worried at 3 hours and was banging on the operating doors at 3 1/2 hours. The surgeon finally emerged to talk to me at 1:15 (3 3/4 hours).
The great news is that they believe they got everything and the pathologist was very pleased with the results of the chemo. It took longer than expected, as they had to take a larger section than they had initially thought and they had to do quite a bit of work on the lymph nodes. The surgeon said Gerri was awake, in recovery and would be out in 20 minutes... 45 minutes later they rolled Gerri out.
Subject: Surgery completed
At 8:30, they scanned Gerri's breast again and marked the locations for the surgeon. Do not know what I expected but certainly, something more sophisticated than them simply whipping out a magic-marker and putting X's on O's around her chest and underarm...
The surgeon told me the operation would take 1 1/2 hours and she would come talk to me once complete. Rolled Gerri into the operating room at 9:30. I was patient for the first 1 1/2 as directed, started pacing at 2 hours, started muttering and really getting worried at 3 hours and was banging on the operating doors at 3 1/2 hours. The surgeon finally emerged to talk to me at 1:15 (3 3/4 hours).
The great news is that they believe they got everything and the pathologist was very pleased with the results of the chemo. It took longer than expected, as they had to take a larger section than they had initially thought and they had to do quite a bit of work on the lymph nodes. The surgeon said Gerri was awake, in recovery and would be out in 20 minutes... 45 minutes later they rolled Gerri out.
I was surprised to see a bottle of A+ blood being pumped into her IV (surgeon did not mention that they had to resort to a transfusion) but Gerri was awake and other than looking very pale, was in good shape. There were six incisions, a lot of bandages and a couple tubes running out of her chest into a drain bottle hanging off the side of the bed. They only gave her one transfusion and once complete switched to saline with painkiller and antibiotics mixed in. Later in the day, they gave her another injection of claxine and apparently, we are going to have to keep giving her the daily injections for a couple more months. The surgeon and cardiac specialist came to the room later and explained that they were still concerned about blood clots so Gerri will need to remain in the hospital for a few more days. This did not make Gerri too happy as the surgeon initially said she would have to stay 1 1/2 - 2 days but Alexis and I told Gerri that it would make us feel better if she stayed there a few days to make sure everything is OK. Gerri reluctantly agreed. Tonight I will take a sleeping pill to try and catch up for the past two weeks I have not slept... most nights I wake up every 30 minutes to check on Gerri...
When I asked the surgeon, "So can we say Gerri is cancer free now?" the doctor said it was too soon to say and there would definitely be radiation needed especially since they found so many nodes under her arm. She said things look VERY good but would not be more definitive than this. She told me to not let Gerri plan on rushing out of the country too soon as they want to monitor her and make sure everything is OK. Before I could ask about our planned September trip to the USA a nurse came and grabbed the doctor so we will have to see exactly what she means by "rushing out"... does she mean days, weeks or months?
In our continuing efforts to share everything so it might help someone else get through all this... I have scanned the porta-catheter that was removed from Gerri's chest (I just love how the hospitals here give you souvenirs of your visit!). The tube ran up into her neck into the main artery and the round piece was just above her right breast (all of it under the skin).
Stayed at the hospital until they kicked us out and will head back over in the morning. Will keep you posted. Generally, we are breathing a big sigh of relief and feel the worst is over!
When I asked the surgeon, "So can we say Gerri is cancer free now?" the doctor said it was too soon to say and there would definitely be radiation needed especially since they found so many nodes under her arm. She said things look VERY good but would not be more definitive than this. She told me to not let Gerri plan on rushing out of the country too soon as they want to monitor her and make sure everything is OK. Before I could ask about our planned September trip to the USA a nurse came and grabbed the doctor so we will have to see exactly what she means by "rushing out"... does she mean days, weeks or months?
In our continuing efforts to share everything so it might help someone else get through all this... I have scanned the porta-catheter that was removed from Gerri's chest (I just love how the hospitals here give you souvenirs of your visit!). The tube ran up into her neck into the main artery and the round piece was just above her right breast (all of it under the skin).
Stayed at the hospital until they kicked us out and will head back over in the morning. Will keep you posted. Generally, we are breathing a big sigh of relief and feel the worst is over!
26 July 2001 20:58 Thursday
Subject: On to the next step
First thing this morning (Thursday) we went to the oncologist to have the heparin IV/pump removed from Gerri's chest. Took a little while, as Gerri's blood is so thin that she has to sit with pressure on the area where the IV was removed, as the blood just does not want to coagulate.
Then it was on to Gleneagles Hospital where the admission process was relatively painless (being "repeat customers" has its benefits I guess...) although we had to wait about 30 minutes for the room (901) to be prepared. Shortly thereafter, the parade of doctors and nurses commenced. The usual, every two hour; blood pressure, temperature, pulse checks, questions about the presence of dentures, contact lenses or other "foreign bodies", meal requests etc.. Next, an orderly showed up to take Gerri for scans, EKG, blood tests etc. The scan took about an hour and Gerri could see the clots they are worried about in the left calf.
The thrombosis appears to be a bigger concern than the cancer at this point. They cross-matched Gerri's blood to have a supply on hand if needed. The doctor explained that although the three areas (left breast for the tumour, under left arm for glands and removal of the porta-catheter) she is being operated on are not prone to excessive bleeding the doctors are concerned that her blood is so thin that they need extra blood on hand in case they cannot keep it under control.
Subject: On to the next step
First thing this morning (Thursday) we went to the oncologist to have the heparin IV/pump removed from Gerri's chest. Took a little while, as Gerri's blood is so thin that she has to sit with pressure on the area where the IV was removed, as the blood just does not want to coagulate.
Then it was on to Gleneagles Hospital where the admission process was relatively painless (being "repeat customers" has its benefits I guess...) although we had to wait about 30 minutes for the room (901) to be prepared. Shortly thereafter, the parade of doctors and nurses commenced. The usual, every two hour; blood pressure, temperature, pulse checks, questions about the presence of dentures, contact lenses or other "foreign bodies", meal requests etc.. Next, an orderly showed up to take Gerri for scans, EKG, blood tests etc. The scan took about an hour and Gerri could see the clots they are worried about in the left calf.
The thrombosis appears to be a bigger concern than the cancer at this point. They cross-matched Gerri's blood to have a supply on hand if needed. The doctor explained that although the three areas (left breast for the tumour, under left arm for glands and removal of the porta-catheter) she is being operated on are not prone to excessive bleeding the doctors are concerned that her blood is so thin that they need extra blood on hand in case they cannot keep it under control.
The haematologist came in next and explained that her roll during and after the surgery was to monitor Gerri's blood because of the clots. We were told Gerri would go back on (hmmm cannot think of the name but it is another form of blood thinner) a couple hours after surgery. Then a cardiac specialist came in and explained in great detail the issues surrounding the thrombosis and drew diagrams of where the clots are located, what the concern was and things we should be aware of. He talked about things to avoid in the future particularly when flying long distances. No booze, no cola, no coffee or tea. Only water and/or "fresh" juice. Note to those of you who fly, he said everyone should follow these rules...
Late this afternoon the surgeon came in and told us that at 08:30 (Friday) Gerri would have her breast scanned again and they would mark the locations of the incisions. They will take the port out first and close that up before working on the cancer areas (precaution against spreading). Then they would work on the tumour areas. At this point they are planning to remove a section of the breast (she described it as cutting out a piece of pie); we did however agree that if she found more cancer than expected she should do a complete removal. She also told us that they have ordered a special machine that will massage Gerri's leg during the operation to make sure circulation is steady, again because of the thrombosis.
I just got home (visiting hours 8-8) and will head back over first thing in the morning. Keep your fingers, toes and everything else crossed and a prayer or two would be appreciated. I will update again tomorrow.
Late this afternoon the surgeon came in and told us that at 08:30 (Friday) Gerri would have her breast scanned again and they would mark the locations of the incisions. They will take the port out first and close that up before working on the cancer areas (precaution against spreading). Then they would work on the tumour areas. At this point they are planning to remove a section of the breast (she described it as cutting out a piece of pie); we did however agree that if she found more cancer than expected she should do a complete removal. She also told us that they have ordered a special machine that will massage Gerri's leg during the operation to make sure circulation is steady, again because of the thrombosis.
I just got home (visiting hours 8-8) and will head back over first thing in the morning. Keep your fingers, toes and everything else crossed and a prayer or two would be appreciated. I will update again tomorrow.
24 July 2001 17:58 Tuesday
Subject: Round and round we go...
After a very bad few days (blood count riding dangerously low) and Gerri having the pump strapped around her waist we finally were told the blood count was climbing enough for Gerri to see the surgeon. We went in and the great news is the surgeon says the tumour has reduced from the size of a golf ball to the size of a pea and is very optimistic about moving ahead with surgery. There is still a chance that when they get in there they might have to do surgery that is more evasive but now the prognosis is good. With the blood count still too low, they will bring in haematologists to study Gerri when she checks into the hospital on Thursday and will stay with her during the surgery on Friday to monitor her and make sure all goes well.
The surgeon (and us too!) are more optimistic than any of us have been in recent days that there might some bright lights at the end of the tunnel. The pump will still in place delivering heparin until Thursday when the haematologists decides on the next step as the thrombosis continues to be a real concern. More later...
Subject: Round and round we go...
After a very bad few days (blood count riding dangerously low) and Gerri having the pump strapped around her waist we finally were told the blood count was climbing enough for Gerri to see the surgeon. We went in and the great news is the surgeon says the tumour has reduced from the size of a golf ball to the size of a pea and is very optimistic about moving ahead with surgery. There is still a chance that when they get in there they might have to do surgery that is more evasive but now the prognosis is good. With the blood count still too low, they will bring in haematologists to study Gerri when she checks into the hospital on Thursday and will stay with her during the surgery on Friday to monitor her and make sure all goes well.
The surgeon (and us too!) are more optimistic than any of us have been in recent days that there might some bright lights at the end of the tunnel. The pump will still in place delivering heparin until Thursday when the haematologists decides on the next step as the thrombosis continues to be a real concern. More later...
22 July 2001 09:30 Sunday
Subject: Minor setbacks
Tuesday we got a call from the surgeon to re-schedule the appointment due to an emergency. Gerri still went to the oncologist for her regular treatment and the doc decided to take Gerri off blood thinner (for the thrombosis). All set to see the doctor on Saturday.
Friday morning Gerri woke to some pain in her leg (thrombosis). I gathered her up and was rushing out the door watching her turn white from the pain. She almost fainted while we waited for the elevator. Just walking through the door of the doctor's office the staff knew we had a problem and organised a wheelchair to rush her down to radiology to get her leg scanned. The doctor decided to switch her from claxine to heparin as a blood thinner and after getting a couple quarts of antibiotics and boosters (white blood count was low), they hooked her up to a pump (fanny pack size) that slowly pumps heparin into her system and I took her home. The pain subsided later in the day.
Saturday morning it was back to the oncologist only to find that Gerri's blood counts were extremely low so it was another quart of antibiotics and a couple of boosters. The surgeon's appointment was cancelled as nothing can be done until her counts are up. Nurse made a house call to give her another booster last night and will be back to the house today for another booster and antibiotic IV this afternoon. The pump remains until Monday. Never a dull moment!
Subject: Minor setbacks
Tuesday we got a call from the surgeon to re-schedule the appointment due to an emergency. Gerri still went to the oncologist for her regular treatment and the doc decided to take Gerri off blood thinner (for the thrombosis). All set to see the doctor on Saturday.
Friday morning Gerri woke to some pain in her leg (thrombosis). I gathered her up and was rushing out the door watching her turn white from the pain. She almost fainted while we waited for the elevator. Just walking through the door of the doctor's office the staff knew we had a problem and organised a wheelchair to rush her down to radiology to get her leg scanned. The doctor decided to switch her from claxine to heparin as a blood thinner and after getting a couple quarts of antibiotics and boosters (white blood count was low), they hooked her up to a pump (fanny pack size) that slowly pumps heparin into her system and I took her home. The pain subsided later in the day.
Saturday morning it was back to the oncologist only to find that Gerri's blood counts were extremely low so it was another quart of antibiotics and a couple of boosters. The surgeon's appointment was cancelled as nothing can be done until her counts are up. Nurse made a house call to give her another booster last night and will be back to the house today for another booster and antibiotic IV this afternoon. The pump remains until Monday. Never a dull moment!
15 July 2001 08:15 Sunday
Subject: Great (and some frustrating) news
Gerri went in for what was supposed to be... just a check-up and to determine when would be the best time for surgery to remove the balance of the tumour. After close examination, the doctor was very pleased to report that she could not even feel any of the tumours! This was excellent! Just as Gerri was about to jump and run out of the office the doc said, "Let's do one more round of chemo just to be absolutely sure everything is cleaned up. This was like a kick in the teeth! Gerri was immediately whisked into the treatment room and hooked up to another 3-day round of chemo IVs. The good news is the doctor did tell us to make an appointment with the surgeon next week to schedule surgery for final removal of the tumour.
Gerri took the chemo like a trooper. Other than feeling tired, the usual side effects have not hit yet but there will most likely be the usual aches, rashes and cold sores popping up in the next few days. The surgeon appointment is on Wednesday 18 July. We will let you know the outcome shortly thereafter!
Subject: Great (and some frustrating) news
Gerri went in for what was supposed to be... just a check-up and to determine when would be the best time for surgery to remove the balance of the tumour. After close examination, the doctor was very pleased to report that she could not even feel any of the tumours! This was excellent! Just as Gerri was about to jump and run out of the office the doc said, "Let's do one more round of chemo just to be absolutely sure everything is cleaned up. This was like a kick in the teeth! Gerri was immediately whisked into the treatment room and hooked up to another 3-day round of chemo IVs. The good news is the doctor did tell us to make an appointment with the surgeon next week to schedule surgery for final removal of the tumour.
Gerri took the chemo like a trooper. Other than feeling tired, the usual side effects have not hit yet but there will most likely be the usual aches, rashes and cold sores popping up in the next few days. The surgeon appointment is on Wednesday 18 July. We will let you know the outcome shortly thereafter!
15 June 2001 06:30 Friday
Subject: More good news!
Gerri went in to her check-up and although her white blood cell count was a bit low and she required a booster... the great news is that the tumour 80% reduced! The doctor is sure that there will be no need for a mastectomy. There will be another 3-day series of chemo treatments next week, followed by some rest then surgery to remove the balance of the tumour. If things look, good inside there should be a few weeks of radiation and then she is done. There is a slight possibility of oral chemo but that is not confirmed at this point. Other than feeling tired, she looks good and is in good spirits.
It has been almost a year and so I went in to see my orthopaedic surgeon to check on my ankle... The good news is that the bones are fully healed and he is very pleased with my progress. The bad news (not bad but not something I have been looking forward to...) is that on 3 July I am heading back to the hospital for surgery to remove the implants. The Doc says I will have to be off my feet for a week and on crutches for a few more weeks but after that; I should be good as new... Gerri and I will make a fine pair that week... Will be challenging to see who takes care of whom!
Subject: More good news!
Gerri went in to her check-up and although her white blood cell count was a bit low and she required a booster... the great news is that the tumour 80% reduced! The doctor is sure that there will be no need for a mastectomy. There will be another 3-day series of chemo treatments next week, followed by some rest then surgery to remove the balance of the tumour. If things look, good inside there should be a few weeks of radiation and then she is done. There is a slight possibility of oral chemo but that is not confirmed at this point. Other than feeling tired, she looks good and is in good spirits.
It has been almost a year and so I went in to see my orthopaedic surgeon to check on my ankle... The good news is that the bones are fully healed and he is very pleased with my progress. The bad news (not bad but not something I have been looking forward to...) is that on 3 July I am heading back to the hospital for surgery to remove the implants. The Doc says I will have to be off my feet for a week and on crutches for a few more weeks but after that; I should be good as new... Gerri and I will make a fine pair that week... Will be challenging to see who takes care of whom!
26 May 2001 10:36 Saturday
Subject: Pleased to report a quiet few weeks!
I am pleased to report the past two weeks have been (comparatively) quiet. Although Gerri suffered from more nausea than the other treatments and the port infection continues to flare up occasionally overall she is handling this treatment OK. The injections have been reduced to one per day as the thrombosis is now under control. There have been some side effects such as bumps on her skin that itch her like crazy and she still needs to take it slow and easy but for the most part, she is back on her regular school schedule.
Alexis wrote about her perspective on cancer and it was printed in the school paper. There is only one more week of school (Alexis graduates on 31 May) then school is over for both Alexis and Gerri. Alexis has decided to stay in Singapore for the summer and has taken a part-time job waiting tables at Tony Roma's, which is just a few blocks from home. Gerri will be concentrating on getting better and all three of us are planning to head over to the USA to help get Alexis set-up at University of California, Santa Barbara in September.
It feels great to be able to report mostly good news for a change!
Subject: Pleased to report a quiet few weeks!
I am pleased to report the past two weeks have been (comparatively) quiet. Although Gerri suffered from more nausea than the other treatments and the port infection continues to flare up occasionally overall she is handling this treatment OK. The injections have been reduced to one per day as the thrombosis is now under control. There have been some side effects such as bumps on her skin that itch her like crazy and she still needs to take it slow and easy but for the most part, she is back on her regular school schedule.
Alexis wrote about her perspective on cancer and it was printed in the school paper. There is only one more week of school (Alexis graduates on 31 May) then school is over for both Alexis and Gerri. Alexis has decided to stay in Singapore for the summer and has taken a part-time job waiting tables at Tony Roma's, which is just a few blocks from home. Gerri will be concentrating on getting better and all three of us are planning to head over to the USA to help get Alexis set-up at University of California, Santa Barbara in September.
It feels great to be able to report mostly good news for a change!
12 May 2001 11:39 Saturday
Subject: On to a new round...
Well just as Gerri started getting colour back into her face and a twinkle in her eye she headed back into another (different) phase of chemotherapy. On Wednesday, we went to see the Oncologist who was concerned about bruising around the port in her chest so we were sent to radiology to have a test done to make sure the port was not leaking and to try to figure out why it was so inflamed. The good news is there were no leaks however; they are not sure why it was so swollen... They inserted a needle for the test and decided to leave it in...
Neither Gerri nor I slept too well that night, as it just did not seem right having a 1 1 /2 inch needle sticking out of her chest. The next day back to the Centre where they attached an electronic pump to continuously flow chemo directly into Gerri's system. It was the size of a large portable CD player and fit into a fanny pack that she has to carry around with her. Then on Friday, it was back to the Centre to supposedly just refill the pump, only to have the doctor change her mind, remove the pump and needle and drip the balance in via IV in the office.
We were back in the Centre this morning (Saturday) for a booster shot to make sure the white blood cell count stays up and were told that the next chemo treatment will be 1 June then three more weeks of rest followed by another jolt of chemo. Based on this schedule we anticipate surgery the beginning of July then followed by 6 weeks of daily radiation.
The only visible effects we see right now are some aches and pains and lots of sleep. I continue to give Gerri the shots twice daily to control the thrombosis, which is greatly improved. Things seem to keep moving in the right direction although certainly not fast enough....
Subject: On to a new round...
Well just as Gerri started getting colour back into her face and a twinkle in her eye she headed back into another (different) phase of chemotherapy. On Wednesday, we went to see the Oncologist who was concerned about bruising around the port in her chest so we were sent to radiology to have a test done to make sure the port was not leaking and to try to figure out why it was so inflamed. The good news is there were no leaks however; they are not sure why it was so swollen... They inserted a needle for the test and decided to leave it in...
Neither Gerri nor I slept too well that night, as it just did not seem right having a 1 1 /2 inch needle sticking out of her chest. The next day back to the Centre where they attached an electronic pump to continuously flow chemo directly into Gerri's system. It was the size of a large portable CD player and fit into a fanny pack that she has to carry around with her. Then on Friday, it was back to the Centre to supposedly just refill the pump, only to have the doctor change her mind, remove the pump and needle and drip the balance in via IV in the office.
We were back in the Centre this morning (Saturday) for a booster shot to make sure the white blood cell count stays up and were told that the next chemo treatment will be 1 June then three more weeks of rest followed by another jolt of chemo. Based on this schedule we anticipate surgery the beginning of July then followed by 6 weeks of daily radiation.
The only visible effects we see right now are some aches and pains and lots of sleep. I continue to give Gerri the shots twice daily to control the thrombosis, which is greatly improved. Things seem to keep moving in the right direction although certainly not fast enough....
06 May 2001 13:52 Sunday
Subject: This past week...
As weeks have gone lately this had been relatively calm with Gerri resting and then heading back to school for a short week (Wed-Thu). She seemed to be progressing well. Thursday afternoon I headed to Doctor late in the day to have check-up (I am also being tested for cancer, just to be on the safe side...). I had a needle in my arm drawing out blood when my hand phone rang only to have Alexis tell me that Gerri was in pain and was headed for the hospital. Needless to say, my test was interrupted as I hotfooted it over to Mount Elizabeth Hospital and found Gerri and Alexis in the Oncology Centre.
The porta-catheter that had been inserted in her chest and neck had suddenly decided it needed attention so it decided to be infected... A couple injections and many antibiotics later we went home. The pain killers did not kick into until way into the wee hours of the morning but Gerri was finally able to doze off. I am glad to report that the following morning there was significant improvement. It still smarts for Gerri to cough or sneeze but the pain has subsided significantly. The injections are also doing their job with the deep vein thrombosis somewhat in check. Another week of rest before she starts on round two of Chemotherapy. Wish us luck!
27 April 2001 20:02 Friday
Subject: Good news and not as good news...
Last Friday was Gerri's eight of eight heavy-duty chemo treatments. A week of rest (which I am glad to report she did exactly that, no school) then today we went in for an examination. The last two treatments hit her like a ton of bricks and she was literally winded after just walking from the bedroom to the living room. Saying that we have seen a very significant improvement this week but her right leg has been hurting her to the point that she has been very visibly limping (felt like a pulled muscle even though she has been in bed all week...)
The great news is that the tumour in her breast has reduced 70%, the nodes under her arms are no longer detectable and there is no longer any sign of cancer on the outer skin (it used to be very inflamed and was painful). The doctor reports that Gerri has responded very well to the chemo and is pleased with her progress!
We were relieved and excited that this is almost over until the doctor starts telling us about the next steps...
Two more weeks of rest with no treatments or medication. Just building up her strength again by eating right, taking vitamins shakes etc. Then we have a choice to make...
1. Surgery that will most likely mean a mastectomy and then three more weeks of a lower strength chemo that is literally attached to Gerri and continually pumped in her system for the three weeks followed by 6 weeks of daily radiation. ... Alternatively,
2. 3 weeks of chemo of the lower strength chemo (with the pump) then a more minor surgery to simply remove the balance of the tumour followed by 6 weeks daily radiation.
Now we think option #2 is the best way to go as the surgery is less severe but we have two weeks to think about it before having to make the decision. Probably the most upsetting news to Gerri was that summer plans of going back to the USA have to put on hold. The doctor says she might be able to get away the end of August but certainly not sooner.
At the end of the consultation, the doctor said she was concerned about the leg so sent us down to radiology to have it checked out. She said she would call us with the results in the morning.
We left the hospital happy about the reduction of the tumour but not too happy about the additional treatments and the prospect of Gerri not being able to make her usual trek to the USA. I dropped Gerri at home and headed to the grocery store to get some much-needed food... Just as I was, about to pull into the parking structure my hand phone went off and it was the doctor saying to bring Gerri back as they have found from the tests that she has deep vein thrombosis in her leg. Thrombosis is a side affect that can be caused by the chemo. Back to the house to pick up Gerri and back to the hospital. We were shown how to administer a shot in Gerri's stomach twice a day for the next couple of months we then went to the pharmacy to buy entire leg length stocking that she has to wear all the time until the thrombosis clears.
Therefore, the most important thing is that the cancer is responding to the treatments and my walking cane from the ankle might not be a wasted investment after all... (I guess the cane part really is not good news...) The bad news is it is not over yet and summer plans all have to be put on hold. Still on a positive note, University of California at Santa Barbara (Alexis' final choice of schools) does not start until well into September so there is a good chance that both Gerri and I can come over to the US then to help get her set-up in school and see everyone. Also on a positive note for me, personally it will be the first summer in our overseas life that I get to spend with Gerri... I wish it were for different reasons though... No plans cast in stone at this point, as we just learned all of the above a few hours ago. I will keep you posted.
15 April 2001 09:38 Sunday
Subject: Gerri Update
I got back to Singapore Thursday morning, spent the day in the office and was able to go meet Gerri at the Oncology Centre and speak with the Doctor during her treatment (#7).
More good/bad news. The good is that the tumour is responding well to the chemo and the lumps under her arms appear to have gone away. The bad news is that after they operate to remove the tumour there will be several weeks of radiation involved (We knew there could be some surgery on the horizon but that is the first we heard about radiation.). That was not in the plans!
This treatment has really seemed to knock the wind out of Gerri's sails. She looks and feels extremely tired. I just talked to her about taking a few days off during the week and got no argument so I know she is feeling it now, Gerri never misses school! We have had a three-day weekend and other than going out for Alexis' belated birthday dinner (I was travelling) I have made Gerri sit and relax and/or nap.
These last few treatments have taken toll on her hair so we are wearing hats pretty well full time now. Gerri has always had the thickest hair of anyone I know and I rather assumed she might lose a little but be spared going thin. I was wrong though, her bald spot now far exceeds mine! One more treatment to go next Friday then she goes in for surgery about two weeks after that. Keep thinking good thoughts for Gerri!
Subject: This past week...
As weeks have gone lately this had been relatively calm with Gerri resting and then heading back to school for a short week (Wed-Thu). She seemed to be progressing well. Thursday afternoon I headed to Doctor late in the day to have check-up (I am also being tested for cancer, just to be on the safe side...). I had a needle in my arm drawing out blood when my hand phone rang only to have Alexis tell me that Gerri was in pain and was headed for the hospital. Needless to say, my test was interrupted as I hotfooted it over to Mount Elizabeth Hospital and found Gerri and Alexis in the Oncology Centre.
The porta-catheter that had been inserted in her chest and neck had suddenly decided it needed attention so it decided to be infected... A couple injections and many antibiotics later we went home. The pain killers did not kick into until way into the wee hours of the morning but Gerri was finally able to doze off. I am glad to report that the following morning there was significant improvement. It still smarts for Gerri to cough or sneeze but the pain has subsided significantly. The injections are also doing their job with the deep vein thrombosis somewhat in check. Another week of rest before she starts on round two of Chemotherapy. Wish us luck!
27 April 2001 20:02 Friday
Subject: Good news and not as good news...
Last Friday was Gerri's eight of eight heavy-duty chemo treatments. A week of rest (which I am glad to report she did exactly that, no school) then today we went in for an examination. The last two treatments hit her like a ton of bricks and she was literally winded after just walking from the bedroom to the living room. Saying that we have seen a very significant improvement this week but her right leg has been hurting her to the point that she has been very visibly limping (felt like a pulled muscle even though she has been in bed all week...)
The great news is that the tumour in her breast has reduced 70%, the nodes under her arms are no longer detectable and there is no longer any sign of cancer on the outer skin (it used to be very inflamed and was painful). The doctor reports that Gerri has responded very well to the chemo and is pleased with her progress!
We were relieved and excited that this is almost over until the doctor starts telling us about the next steps...
Two more weeks of rest with no treatments or medication. Just building up her strength again by eating right, taking vitamins shakes etc. Then we have a choice to make...
1. Surgery that will most likely mean a mastectomy and then three more weeks of a lower strength chemo that is literally attached to Gerri and continually pumped in her system for the three weeks followed by 6 weeks of daily radiation. ... Alternatively,
2. 3 weeks of chemo of the lower strength chemo (with the pump) then a more minor surgery to simply remove the balance of the tumour followed by 6 weeks daily radiation.
Now we think option #2 is the best way to go as the surgery is less severe but we have two weeks to think about it before having to make the decision. Probably the most upsetting news to Gerri was that summer plans of going back to the USA have to put on hold. The doctor says she might be able to get away the end of August but certainly not sooner.
At the end of the consultation, the doctor said she was concerned about the leg so sent us down to radiology to have it checked out. She said she would call us with the results in the morning.
We left the hospital happy about the reduction of the tumour but not too happy about the additional treatments and the prospect of Gerri not being able to make her usual trek to the USA. I dropped Gerri at home and headed to the grocery store to get some much-needed food... Just as I was, about to pull into the parking structure my hand phone went off and it was the doctor saying to bring Gerri back as they have found from the tests that she has deep vein thrombosis in her leg. Thrombosis is a side affect that can be caused by the chemo. Back to the house to pick up Gerri and back to the hospital. We were shown how to administer a shot in Gerri's stomach twice a day for the next couple of months we then went to the pharmacy to buy entire leg length stocking that she has to wear all the time until the thrombosis clears.
Therefore, the most important thing is that the cancer is responding to the treatments and my walking cane from the ankle might not be a wasted investment after all... (I guess the cane part really is not good news...) The bad news is it is not over yet and summer plans all have to be put on hold. Still on a positive note, University of California at Santa Barbara (Alexis' final choice of schools) does not start until well into September so there is a good chance that both Gerri and I can come over to the US then to help get her set-up in school and see everyone. Also on a positive note for me, personally it will be the first summer in our overseas life that I get to spend with Gerri... I wish it were for different reasons though... No plans cast in stone at this point, as we just learned all of the above a few hours ago. I will keep you posted.
15 April 2001 09:38 Sunday
Subject: Gerri Update
I got back to Singapore Thursday morning, spent the day in the office and was able to go meet Gerri at the Oncology Centre and speak with the Doctor during her treatment (#7).
More good/bad news. The good is that the tumour is responding well to the chemo and the lumps under her arms appear to have gone away. The bad news is that after they operate to remove the tumour there will be several weeks of radiation involved (We knew there could be some surgery on the horizon but that is the first we heard about radiation.). That was not in the plans!
This treatment has really seemed to knock the wind out of Gerri's sails. She looks and feels extremely tired. I just talked to her about taking a few days off during the week and got no argument so I know she is feeling it now, Gerri never misses school! We have had a three-day weekend and other than going out for Alexis' belated birthday dinner (I was travelling) I have made Gerri sit and relax and/or nap.
These last few treatments have taken toll on her hair so we are wearing hats pretty well full time now. Gerri has always had the thickest hair of anyone I know and I rather assumed she might lose a little but be spared going thin. I was wrong though, her bald spot now far exceeds mine! One more treatment to go next Friday then she goes in for surgery about two weeks after that. Keep thinking good thoughts for Gerri!
15 April 2001 16:48 Sunday
Subject: THANK YOU! To: Singapore American School Faculty
I returned from a two week business trip over the weekend and have not stopped hearing about how wonderful all of you have been from Gerri and Alexis, not only while I was gone, but also since we discovered Gerri's illness. I just want to take a minute to THANK ALL of YOU for everything you have done for Gerri (also Alexis and I). The flowers in her classroom, the great Friday night meals and most of all, the comfort and support everyone has shown for Gerri! We are not in the clear yet, but all signs say we are heading in the right direction and everyone's ongoing support has been a source of inspiration for us.
Most of you do not know me and vice versa, however you might have heard or observed that I tend to be "glass is half empty kind of guy" and I am usually quite cynical of others. All of you have helped open my eyes! My "glass is brimming over these days" after discovering how caring and concerned people can be when someone is in need, especially when it involves the most important person in my life. The treatment this past Friday hit Gerri a little harder than the previous sessions and the Doctor told me the next (and hopefully final) one will hit her a bit harder so she is dragging a bit. Your understanding and continued support over these critical next few weeks would be greatly appreciated.
Again, sincerely, THANK YOU for everything.
Subject: THANK YOU! To: Singapore American School Faculty
I returned from a two week business trip over the weekend and have not stopped hearing about how wonderful all of you have been from Gerri and Alexis, not only while I was gone, but also since we discovered Gerri's illness. I just want to take a minute to THANK ALL of YOU for everything you have done for Gerri (also Alexis and I). The flowers in her classroom, the great Friday night meals and most of all, the comfort and support everyone has shown for Gerri! We are not in the clear yet, but all signs say we are heading in the right direction and everyone's ongoing support has been a source of inspiration for us.
Most of you do not know me and vice versa, however you might have heard or observed that I tend to be "glass is half empty kind of guy" and I am usually quite cynical of others. All of you have helped open my eyes! My "glass is brimming over these days" after discovering how caring and concerned people can be when someone is in need, especially when it involves the most important person in my life. The treatment this past Friday hit Gerri a little harder than the previous sessions and the Doctor told me the next (and hopefully final) one will hit her a bit harder so she is dragging a bit. Your understanding and continued support over these critical next few weeks would be greatly appreciated.
Again, sincerely, THANK YOU for everything.
23 March 2001 19:20 Monday
Subject: Greetings
We are alive and well in Singapore. Funny though, most people in the USA think we live in the third world and yet when we turn on a light switch the lights come on and stay on all day... we don't have 8th graders running around with guns or other weapons in our schools... in the last election, everyone figured out how to punch a hole in ballot... (Oops, did all of that just slip out?)
Gerri is now in her 4th week of chemo... Another treatment today and four more weeks to go. According to the Doc, she is doing great with the lumps reducing significantly. Her hair is going fast and is tired a lot but other than that no bad symptoms to report.
Subject: Greetings
We are alive and well in Singapore. Funny though, most people in the USA think we live in the third world and yet when we turn on a light switch the lights come on and stay on all day... we don't have 8th graders running around with guns or other weapons in our schools... in the last election, everyone figured out how to punch a hole in ballot... (Oops, did all of that just slip out?)
Gerri is now in her 4th week of chemo... Another treatment today and four more weeks to go. According to the Doc, she is doing great with the lumps reducing significantly. Her hair is going fast and is tired a lot but other than that no bad symptoms to report.
For some stupid reason my ankle decided it needed attention again and on Monday, it blew up the size of volleyball... Off to the doc only to have him scare the hell out of me saying he was afraid it was a blood clot and if it travelled to my heart, I was in trouble... When specialist actually gets up from his desk and immediately walks you over to a cardiovascular specialist you start to sweat... They lathered my leg up with gel from toe to hip running a (and now I forget the word... the sonar thing they use to check on baby's... oh my God the memory is going too!) "thing" up and down my leg for an hour. To my relief no clots to speak of but they did find some damage valves so now I'm also popping pills that are supposed to repair the veins and taking diuretics to make the swelling go down... Damn I sound like my father!
On a much more positive note... Alexis just received her acceptance to U. of San Diego and a $25,000 Dean's scholarship... Of course, she is still waiting to hear from Santa Barbara where she thinks she might also want to go after having been accepted to Davis, CSULB, Irvine, Santa Cruz, and SFO... Choices... We are so proud of her!
We really do appreciate the warm thoughts and concern. Interesting times, we live in and learning to play with a different set of rules is just like that first day we set foot in high school... Many unknown things to deal with... Excited, scared, confidant, worried... Nevertheless, we all got through it and found out it was only a short phase of our lives...
On a much more positive note... Alexis just received her acceptance to U. of San Diego and a $25,000 Dean's scholarship... Of course, she is still waiting to hear from Santa Barbara where she thinks she might also want to go after having been accepted to Davis, CSULB, Irvine, Santa Cruz, and SFO... Choices... We are so proud of her!
We really do appreciate the warm thoughts and concern. Interesting times, we live in and learning to play with a different set of rules is just like that first day we set foot in high school... Many unknown things to deal with... Excited, scared, confidant, worried... Nevertheless, we all got through it and found out it was only a short phase of our lives...
07 March 2001 08:29 Wednesday
Subject: Gerri Update
Gerri's second treatment is this afternoon (Wed) and then next week it is Friday. We wanted to move them to Fridays to give Gerri the weekend to feel a bit better before heading to school. If they go like the first we will be home free but realistically, we know we were very lucky with the first one.
Monday Gerri had a bone scan. They injected her with radioactive material and sent her through a machine that checked her entire skeletal structure. We will have the results on Friday. Alexis and I kept looking at her waiting for her to glow in the dark... we were not disappointed when she did not! They actually gave her instructions to stay away from pregnant women and infants for 24 hours after the procedure...
I went back into the Doc as my strep throat has flared up again... He gave me another 10 days of antibiotics and my favourite, nasal spray (I hate that stuff). Also made an appointment to get myself checked not looking forward to where they like to send that camera.... Alexis remains healthy thank goodness.
27 February 2001 07:25 Tuesday
Subject: First Chemo Session
The first session for Gerri was long but so far so good! We went in at 12:30 and met with the Doctor who explained everything again and reaffirmed that everything points to Gerri responding well to this type of chemo. A half hour later, we were hooked up and Gerri literally took about 3 quarts!
Vitamins, amino acids, saline, Taxol (the strong stuff) and other medicines. The process took 2 ½ hours but they said the first one usually takes a bit longer than others do. It was all delivered through IV tubes that were connected to the porta-catheter that is now planted under the skin just above her breast. All the bandages were removed from Friday's surgery and we were happy to see that the incisions were not a fraction as big as we thought (in comparison to the bandages). Gerri sat there and went from relaxed to restless to sleeping as the medication was administered. We left with a bag full of other medicines to help her sleep, anti-vomiting, vitamins etc.
The great news is that Gerri slept the best she has since this whole thing started and no nausea or other bad feelings. Let us hope the rest of the treatments are the same! One down 7 sessions to go!
Subject: Gerri Update
Gerri's second treatment is this afternoon (Wed) and then next week it is Friday. We wanted to move them to Fridays to give Gerri the weekend to feel a bit better before heading to school. If they go like the first we will be home free but realistically, we know we were very lucky with the first one.
Monday Gerri had a bone scan. They injected her with radioactive material and sent her through a machine that checked her entire skeletal structure. We will have the results on Friday. Alexis and I kept looking at her waiting for her to glow in the dark... we were not disappointed when she did not! They actually gave her instructions to stay away from pregnant women and infants for 24 hours after the procedure...
I went back into the Doc as my strep throat has flared up again... He gave me another 10 days of antibiotics and my favourite, nasal spray (I hate that stuff). Also made an appointment to get myself checked not looking forward to where they like to send that camera.... Alexis remains healthy thank goodness.
27 February 2001 07:25 Tuesday
Subject: First Chemo Session
The first session for Gerri was long but so far so good! We went in at 12:30 and met with the Doctor who explained everything again and reaffirmed that everything points to Gerri responding well to this type of chemo. A half hour later, we were hooked up and Gerri literally took about 3 quarts!
Vitamins, amino acids, saline, Taxol (the strong stuff) and other medicines. The process took 2 ½ hours but they said the first one usually takes a bit longer than others do. It was all delivered through IV tubes that were connected to the porta-catheter that is now planted under the skin just above her breast. All the bandages were removed from Friday's surgery and we were happy to see that the incisions were not a fraction as big as we thought (in comparison to the bandages). Gerri sat there and went from relaxed to restless to sleeping as the medication was administered. We left with a bag full of other medicines to help her sleep, anti-vomiting, vitamins etc.
The great news is that Gerri slept the best she has since this whole thing started and no nausea or other bad feelings. Let us hope the rest of the treatments are the same! One down 7 sessions to go!
23 February 2001 18:49 Friday
Subject: Update
We spent a delightful day at the hospital today
Took Gerri in at 10am and she was admitted. At 1pm, they took her into surgery and finally brought her back out at 3:30. While she was out, they took complete samples from both breasts and inserted the porta-catheter into her neck that will be used to inject the medicine. She was a bit groggy but came around quickly. We sat and watched her for a couple of hours and got to bring her home at seven. She says it feels like someone ran a bike over her chest and is tired but overall feeling fine. The painkillers will help her sleep tonight.
Monday at 12:30, she goes in for her first chemo treatment. The doctor said they are going to do an 8-week program and at the end, we will determine if surgery is needed. Will keep you updated as things happen.
Subject: Update
We spent a delightful day at the hospital today
Took Gerri in at 10am and she was admitted. At 1pm, they took her into surgery and finally brought her back out at 3:30. While she was out, they took complete samples from both breasts and inserted the porta-catheter into her neck that will be used to inject the medicine. She was a bit groggy but came around quickly. We sat and watched her for a couple of hours and got to bring her home at seven. She says it feels like someone ran a bike over her chest and is tired but overall feeling fine. The painkillers will help her sleep tonight.
Monday at 12:30, she goes in for her first chemo treatment. The doctor said they are going to do an 8-week program and at the end, we will determine if surgery is needed. Will keep you updated as things happen.
23 February 2001 09:13 Friday
Subject: My call...
Gerri went in for her routine visit this week and they discovered a large lump in her left breast. They did a whole battery of tests and have concluded that it is cancer. We met with the surgeon and then with an oncologist, (we have lucked out and apparently have found the best two specialists in the fields here in Singapore. Both were trained in the USA and are up on all of the latest and greatest).
The bad news good news is the cancer she has is growing very quickly (lymphatic) and they say this type reacts well to chemotherapy. Today we are going into the hospital to have aporta catheter installed above her breast. An implanted catheter is used to administer the chemo over the next eight weeks. This way they do not have to stick her with needles in the back of her hand every week, they simply put it through the port. It will be a day surgery for the insertion and eventually will come out.
On Monday, we start an 8-week program of chemo. We have been briefed on all the side effects and will be shopping for hats.
So here, we sit with our third disaster in 6 months. The Chinese say bad things come in 3's. So with my ankle, Alexis' gall bladder and now Gerri, we figure we are done for the year! More later.
Thank you all for the prayers, cards, flowers, emails... It really helped to know we have so many people out there thinking positive thoughts for Gerri! We could not have gotten through it without so much support!
Subject: My call...
Gerri went in for her routine visit this week and they discovered a large lump in her left breast. They did a whole battery of tests and have concluded that it is cancer. We met with the surgeon and then with an oncologist, (we have lucked out and apparently have found the best two specialists in the fields here in Singapore. Both were trained in the USA and are up on all of the latest and greatest).
The bad news good news is the cancer she has is growing very quickly (lymphatic) and they say this type reacts well to chemotherapy. Today we are going into the hospital to have aporta catheter installed above her breast. An implanted catheter is used to administer the chemo over the next eight weeks. This way they do not have to stick her with needles in the back of her hand every week, they simply put it through the port. It will be a day surgery for the insertion and eventually will come out.
On Monday, we start an 8-week program of chemo. We have been briefed on all the side effects and will be shopping for hats.
So here, we sit with our third disaster in 6 months. The Chinese say bad things come in 3's. So with my ankle, Alexis' gall bladder and now Gerri, we figure we are done for the year! More later.
Thank you all for the prayers, cards, flowers, emails... It really helped to know we have so many people out there thinking positive thoughts for Gerri! We could not have gotten through it without so much support!
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